Could I be healthy?

September 13, 2012

When I wrote a couple weeks ago about being hopeful that maybe my health could improve one day, that was based on my own gut feeling (so to speak) that I could get better.  My doctors have not expressed that kind of hope in many years.  My new naturopath has seemed more optimistic, but she has never spoken about our end goal, and I was not ready to ask.  I was afraid to ask.

Today I steeled myself.  I took a deep breath.  I stared blankly at a spot on the opposite wall.  And I asked: “What do you think my prognosis is?  What’s our goal?”

She surprised me with her answer: “That you’ll go back to work, and that at the end of the work day you’ll still feel good and be able to do things.  That you’ll go out and do things on weekends.”

Obviously she misunderstood, so I clarified: “No, I mean, what’s our realistic goal?”

Imagine my shock when she said that yes, that’s the realistic goal.  So of course I asked when she thinks that might happen.

“Within about 1 year from now I expect you’ll be back at work.”

What?!?  I had figured she had a positive outlook for my recovery, but this was more than I had expected.  I didn’t quite believe it, and I still don’t.  1 year seems like such a short time.  After all these years of my body destroying itself, could I really be “cured” in 1 year?  Of course, I wouldn’t really be “cured,” but to be so much healthier seems like the ultimate cure to me.

Of course, she thinks that 1 year is too long.  She practically apologized, explaining that if I had gotten treatment sooner, before my conditions had taken such a toll on my body, then she could have reversed their affects more quickly.  Still, she has helped me more in the last 3 months than my other doctors have in the last 8 years.  And she says that we’ve “only scratched the surface” in terms of treating me.  So maybe it’s possible?

1 year.  12 months.  I can’t seem to grasp this.  Could it be possible?  Could I be relatively “healthy”?  Could I work full time and support myself, and still have the energy to see friends, pursue hobbies, date?  It just doesn’t seem possible.  When I wrote about my hopes before, they felt like a far-off dream.  I figured maybe in a few years, if I was lucky…. but 1 year?  That feels so soon.  Next fall.  Dare I hope?  What if it doesn’t happen?  Would I be too crushed?  But then, what if it does?

Some people dream of buying a bigger house, or driving a fancy car, or flying all over the world in a private jet.  I only want my health and my loved ones.  Could I really be within reach of having it all?  Could I be healthy?


Health insurance “options”

September 4, 2012


Good bye nausea, hello diet

August 15, 2012

Yesterday I said goodbye to the old diet and today I welcome the new diet – AT LAST!

There’s no doubt that the old diet helped – I felt soooo much better within a week of starting it.  But I think I could be doing even better than I already am.  And on top of that, I can bring back a whole lot of foods that I love (pasta sauce! popcorn!) and sure I have to give up a lot of foods I really enjoy (peanuts, broccoli, quinoa) but at least now I know that I’m on the right track.  Ok, sure, the tests aren’t 100% accurate, but it should be pretty damn close!

No, this won’t be easy, but what the hell is?  It’s WORTH IT!  I think that’s something that “healthy” people don’t understand.  A few have said to my face “Oh, I could never be gluten-free.”  To them, the option is to eat foods they love or to give up those foods.  To me, the option is to suffer nausea, diarrhea, abdominal pain, cramping, and fatigue on a regular basis, or to give up some foods that aren’t necessary for my survival.  When you look at it that way, it’s not much of a choice, is it?  So now I’ll give up a few dozen foods on top of gluten.  Some will be temporary and some will be permanent and I really don’t care – I’m just so glad to have a plan!

By the way, for anyone who’s wondering, the mold and herb tests came back with a few minor reactions but nothing much, and I only have one strong chemical reaction, so I’ll be checking all of my cleansers and nail polish (luckily I don’t wear makeup!) to make sure I’m not getting exposed that way.  For me, the big results were all in the food categories, which was really no surprise.

So now I want to say a big THANK YOU to everyone who has helped me.  My parents have been the most amazing, supportive people I could hope for.  Several incredible friends stood by my side offering advice and comfort.  My grandfather generously paid for the test when insurance wouldn’t cover it.  My naturopath suggested the test and went out of her way to get me a discount.  And so many readers have emailed, commented, and tweeted with advice and support.  Thank you everyone!  Let’s face it, in the CI world celebrations can be a bit too rare, so I’m thrilled to have a good reason to celebrate today.  This is only one step in the journey, but it’s a big one!


7 weeks, no cheating, feeling proud

August 14, 2012

Wow, I am so proud of myself!

I usually see all the crap I have to do for my health as just the crap I have to do for my health.  I have no choice, so I’ll do it.  Well ok, I don’t do my physical therapy every day.  And sometimes I use too much energy to do something I really want to do.  But for the most part, I just suck it up and do (or don’t do) whatever I have to.

That’s why when I went gluten-free, I didn’t understand why people seemed so impressed by it.  They were shocked that I didn’t occasionally slip up and go for the gluten foods just for the hell of it.  This didn’t make any sense to me – why would I do something that would make me sick?  Yes, I accidentally ate gluten a couple of times – there’s a learning curve after all.  But I never did it intentionally.

But this elimination diet has been very different.  I guess the big difference is that gluten could be affecting my health in major ways, whereas we suspect this diet has more of an immediate affect.  I noticed big changes within just a week of starting it, so I figured I could cheat, and still be ok if I went right back on it, right?  Right?  RIGHT?  Besides, not every food I eliminated is a problem, it’s just a guessing game, so maybe a bite of cheese would be ok?

I came so close to cheating so many times.  I was ready to do it over and over.  Maybe I’d just take one bite of the gluten-free whoopie pie (pictured.)  Maybe I’d just try a couple of potato chips.  It wouldn’t really hurt, would it?  But I knew it would hurt mentally, whether or not it hurt physically.  If I cheated once then I’d keep doing it over and over and soon I’d be sick again.

Taking the blood test that would give me more concrete answers was great, but I knew I should still stay on the diet until I got the results.  Otherwise I’d just be feeling bad again.  It’s been really tough this time around.  My willpower was testing more than ever.  I wanted just a little bit of sugar, or to ignore the canola oil exemption, or to have a little bit of ketchup…. but I didn’t.

And so even though I usually see my health stuff as simple obligations and not as something to be proud of, today I am damn proud!!!  I stayed on this tough diet for 7 full weeks without cheating even once!  It’s such a relief!  Tomorrow I get my blood test results and I’ll know for certain (or at least as certain as a blood test can be) which foods are ok and which I have to avoid.  That will be easier, because at least I’ll know.

So today I’m celebrating my big success before starting a new challenge tomorrow.  There’s always a new challenge.  I’m just glad I won the last one (and that it didn’t last the 6-12 months that it could have without the blood test!)