Discovering Section 8 changes by word of mouth

March 27, 2024

It started with a message from a friend, asking what I knew about the situation. This was the first I’d heard of it. My friend heard about it from a friend. That friend of my friend heard about it from a friend of hers. The news spread, and we scrambled to learn the details, and how it would affect us. The news? The federal government is changing Section 8 housing voucher requirements this year. Today, two months later, I have more information, but none of the housing authorities in my area that I’ve checked have notified their tenants. Word is still spreading by word of mouth. And it’s spreading slowly.

I don’t want anyone to panic, but I also don’t want folks left in the dark. So I’m going to share what I know so far.

First, let’s take a moment to consider just how shitty this is. The federal Department of Housing and Urban Development (HUD) apparently changed the rules back in 2016, and the change was to take effect in 2024. That gave everyone 8 years to get their shit together. But they didn’t. The director of my housing authority told me that she only recently received information about this, and is still waiting for even more details. WTF? There are millions of people on Section 8. You’d think HUD would have a plan for this, but apparently, they don’t. Or they do, but it’s not a great one. Because every housing authority should really have gotten this information in enough time to formulate plans.

Section 8 is a federal program in the U.S. to help low income folks with housing. It’s a federal program, but it is administered by local housing authorities, and each can have slightly different rules. For example, one town might require housing inspections yearly while another could require them twice a year. I liked living in my former city, but the rental limits allowed on those Section 8 vouchers were unrealistically low. A big reason I moved to my current town was because they had much more realistic voucher limits – with effort, I could actually find a 1-bedroom apartment that met their requirements. No amount of effort would have made it work in my former city. These kinds of allowed differences are going to be very important for the current situation.

So far, I have learned about 3 changes, but my impression is that there could be more coming. Of course, it’s hard to tell, given the lack of transparency or notifications. I have spoken with my state and U.S. rep’s offices (and I spoke to my state rep directly), my town’s social worker, and the executive director of my housing authority. The representative’s offices didn’t even know about this until I informed them! One even told me that there is no asset limit, and sent me a pdf with that statement. I had to remind him that this is something new in 2024, and point out that the pdf he sent me was dated 2020. That’s how horrible the communication is.

The first change is an asset limit. Until now, there hasn’t been any asset limit. The new asset limit is $100,000. As the head of my housing authority said, to some people this is a huge amount of money and to others it’s very little. My understanding is that folks with more than $100,000 in assets will not be eligible for a first-time voucher. For folks who already have a voucher, it is up to their individual housing authority! Yes, that’s right, one town might enforce this new rule and the neighboring town might not. And it’s just down to luck whether your city/town enforces it or not. Just like whether your city/town requires one or two housing inspections per year. And while some housing authorities have already made decisions about this, others have not. Either way, there’s still a chance to say something. I’ll get to that in a moment.

The second change has to do with medical deductions. I spend a fair amount on medical practitioners, equipment, tests, and treatments that aren’t covered by insurance. This reduces my reported income, which in turn reduces my rent. Apparently, this is going to be changing. Unfortunately, I learned about this on the phone, like with all of the other information, because nothing is in writing yet. And I’m not sure I understood. It sounded like the minimum amount of medical expenses that would count is currently $4000, and that would be going up to $8000. That would be a huge problem for a lot of people! But again, I’m not 100% sure about this, so please check for yourself (once they actually know what they’re doing, that is.)

The third change seems like a good, but strange, one. Current voucher holders will be asked if their income is under a certain amount. On the phone, I couldn’t tell if she said $15,000 or $50,000. I’m guessing the former, but I’m not certain. If they say yes, then they won’t need to send in proof.

Apparently, these changes are meant to decrease the paperwork that housing authorities are dealing with. I can see how this would be the case. If someone says they earn under, say, $15,000, and based on their initial paperwork this seems likely, then the housing authority won’t need to go to so much trouble. If the minimum amount of medical expenses to count is doubled then fewer people with bother to submit receipts. If assets of over $100,000 knock people out of the program, then a quick asset check will take care of things and there will be no need for income verification. Yup, that part makes sense.

The problem is the human toll. HUD says they want to reduce homelessness. That’s a good goal. But these measures won’t do that! Let’s say I had $150,000 in assets. That would kick me off my voucher in some towns. In my case, without the voucher, my rent would go up $2000 in my current “affordable housing” apartment. Maybe I could find someplace cheaper to live, but the options are very limited, especially because I need a home without stairs. I would need to get a roommate, but then the chances are that they would eat gluten and I would get a lot sicker. A friend is currently looking for an apartment with a roommate and even then, her budget (which is $1100 more than I currently pay) is making that very difficult. Still, let’s say I get a roommate (a bad idea!) and only pay another $1100 per month. In three years and two months, I’ll be under the asset limit. If I pay the extra $2000 to stay in my current apartment, I’ll be under the limit in under two years. The problem is that I’ll need to reapply for Section 8. In my area, the wait lists are 10 years long. In other areas, the waitlists are closed altogether. In my current home, that $150,000 in assets would be gone in under 6 years, long before I’d be likely to get another voucher. Then what?!?

Now, I want to state here that I am very privileged, and I am grateful for it, while also feeling horrible that so many others are not. First, my housing authority is not implementing the asset limit which, yes, would cause me to lose my voucher. At least, this is what they say. I’ll feel better when I see it in writing. And second, my parents are able to help me financially. While they can’t cover all of my bills, they can give me enough to make things work. And as a last result, I could move in with them. This isn’t a great option, though, because (1) none of us would like it (2) their home has stairs to get in and the guest room is on the second floor (3) they eat a lot of gluten foods and wouldn’t stop if I moved in. Still, at least I wouldn’t be homeless, like so many others will be.

Now, if HUD really wants to reduce homelessness, you know what they could do? They could offer more vouchers! There’s obviously a need for more vouchers when wait lists are so long. What they should not do is kick people out of the program. These are folks who are saving up for a house, using their funds to cover medical expenses, paying off debts, and more. Taking away their housing vouchers doesn’t mean they’ll land on their feet. It will only perpetuate the cycle.

If you have a Section 8 voucher, there is one thing you can do: speak up! It seems that housing authorities are required to have a 90-day public comment period before instituting major changes like these. Few people go to these meetings or send in comments, so the ones that do speak up are heard even louder. Speaking up doesn’t mean the housing boards will listen, but it’s worth a try! Call your local housing authority and ask then their public comment period will start and how you can best comment. Attend their meetings. Make your voice heard!

Of course, the other thing we need to do is to elect more politicians at all levels who work to help low-income and disabled folks – I mean politicians who actually help us, and don’t just implement these kinds of policies (or appoint people who implement these kinds of policies) that might look nice on paper but which actually harm a lot of people. Low-income and disabled people are blamed for so many of society’s ills. We’re convenient scape-goats. But those problems aren’t our fault, and taking away our lifelines won’t improve anyone else’s lives. We need people who will fight for us, not against us.

Before I leave, one last thought: please share this. It is disgraceful that this isn’t being talked about. The only article I have seen came the National Low Income Housing Coalition. No major news outlets are discussing it, housing authorities (at least in my area) aren’t putting out statements, and even our politicians don’t know about it. I don’t want someone to get a letter in the mail letting them know they’ll be losing their voucher in just a few months. Or that their medical expenses will no longer count as deductions. That won’t be enough time for people to make arrangements, and the emotion turmoil will be so much worse. People have a right to know that they might be facing these changes. I rarely ask you to post my blog posts to social media or to share them with friends, but I think this is one case where it’s worth asking. We need to let people know what’s coming so they can prepare.

If you have more details about this situation, please comment below or email me! I want to have as much information as possible. I’ll update this post with anything I learn.


Vaccine ableism

March 19, 2021

For weeks, whenever someone asked me when I would be eligible for the Covid-19 vaccine, I told them I would be eligible at the start of Phase 2. They nodded. It made sense. It made sense to me, too. After all, I have a bunch of risk factors. Phase 1 was for medical personnel, and Phase 2 would be for folks with risk factors due to age and/or health conditions, as well as essential workers who weren’t covered in Phase 1 (grocery store worker, utility workers, delivery workers, etc.). Phase 3 was for everyone else. The first part of Phase 2 was for folks who were 65+ or had 2 or more co-morbidities, which I knew I had. But somehow, oddly, I was wrong.

I started to suspect something when I saw the list of conditions that Massachusetts was counting as co-morbidities. At the time, the state’s website simply offered a link to the CDC’s website. The CDC (the Centers for Disease Control and Prevention) offered two lists. The first list was for more serious conditions. I didn’t have anything on that list. The second list was where I fell. I have 5 different conditions/medications that fit into that list. But for some reason, Massachusetts wasn’t using the second list, only the first one.

Then Massachusetts did something mysterious: they added smoking and obesity to the list of eligible conditions. So now people I knew were qualifying because they smoked and were obese but were otherwise totally health. Meanwhile, I wasn’t eligible yet despite having multiple autoimmune conditions and taking an immunosuppressant medication, in addition to other things that were also suspected to be co-morbidities, like central complex sleep apnea. In fact, I wasn’t going to be eligible early at all. Nope, I was getting lumped in with the general population in Phase 3. WTF???

Over and over friends would ask, when are you eligible? Over and over I responded, “I’m not eligible until the general population.” I lost track of the number of times someone said, “I can’t believe I’m eligible before you!” or asked “Why the hell aren’t you eligible before me?” (Spoiler alert: the answer is ableism.) I watched friends with similar health conditions getting vaccinated in other states. I watched friends get vaccinated because they were technically eligible, even though it wasn’t intended for them. For example, one was eligible because she works for a hospital, even though she works in administration, having no contact with patients, and has been working at home all year.

Meanwhile, at my last medical appointment my doctor said, “You need to get the vaccine as soon as possible.” That was immediately followed with, “You aren’t eligible until Phase 3.” I tried to convince myself that waiting wouldn’t matter. After all, I’m staying at home, right? But what happens when I can’t stay home? What really changed my mind was the breast cancer scare I had several weeks ago. I absolutely had to be seen in person. What happens the next time I have to see a doctor in person? Because sooner or later, it will happen again. The vaccine won’t protect me 100%, but it’s a good start.

And to me, that’s the point. Yes, everyone wants the vaccine. But while some folks want to get it so they can eat at a restaurant or hang out with friends (both very important, and I’m definitely not negating the importance of either one), those are optional. There are ways to see people outdoors and at a distance with masks on. Meanwhile, some folks must get medical care, in person, up close, and indoors. Yes, medical offices take precautions. Still, these are not optional visits, and we should be as protected as possible.

Are there folks who need a lot more medical care than me? Yes. Are there folks who are at much higher risk of Covid complications? You bet. I’m not suggesting that people like me should have been first in line. Not for a second. I am saying unequivocally, without the slightest hesitation, that we should not be last in line. It is inexcusable.

This is nothing short of ableism. I have had many doctors tell me that I am at higher risk. My rheumatologist keeps reminding me to stay isolated. I have been following the science. I see folks who have higher risk factors than me who are likewise not eligible until the general population. And yet, Massachusetts did not take us into account. Who determined the order of the vaccine eligibility? Were there doctors and scientists involved? How on Earth did this happen? Why allow folks on that first CDC list but not the second? Why allow people who are obese and have type 2 diabetes to get vaccinated at the start of Phase 2 but not allow someone with type 1 diabetes and severe asthma until the end of Phase 2, and not allow someone who is 54 years old with type 1 diabetes and liver disease until the general population? This makes no sense.

This reminds me of one year ago, in the spring of 2020, when we were first learning about the risk factors of having severe complications from this horrible virus. Over and over people said that most folks shouldn’t worry too much because it mostly just effected the sick and elderly. They were saying, “I’m not worried because I’ll probably be fine, it’ll just kill others.” They were saying that they didn’t care about our lives. That our lives didn’t matter as much. That our lives had less value. Well, fuck that. Our lives have plenty of value and suggesting that it’s okay for those who are sick and/or elderly to become incredibly ill and possibly die is horrifying and inexcusable.

And now, one year later, so many who are sick and older are told to wait because their/our co-morbidities don’t count. What bullshit!

This week, Massachusetts announced that in one month everyone will be eligible for the vaccine. So many disabled people, already at a disadvantage because of difficulty accessing the system, will be forced to compete with healthy, less-at-risk folks for those coveted timeslots. If the past is any indication of the future, a lot of disabled folks will end up at the end of the line, behind healthy folks. This is not ok.

There is nothing I can do about this. I called the governor’s office and reached out on social media. I have spoken up about it in the few ways that I could. I know that this post won’t change anything. But hey, this site is called Chronic Rants, after all, so I am ranting. I am ranting because once again, the government is being ableist and getting away with it and it makes me want to scream.

Maybe we shouldn’t be first, but we absolutely should not be last.


Being disabled does not make me immoral

October 23, 2020

“Who came up with this system of the haves and the have-nots anyway?”
“That would be the haves.”

I can’t remember where I heard that, but it feels appropriate right now. That’s because I am frustrated not only by my lack of income, but especially by the scrutiny my measly income receives.

A few weeks ago, the New York Times broke a story that revealed Trump paid almost no taxes. Despite his huge amounts of money, he found ways around his obligations. Maybe the IRS took a close look at his taxes and determined it was all legitimate. Maybe not. Either way, he got away with it. And he’s far from the only one.

Meanwhile, I am receiving Social Security, housing, food, health insurance, and other benefits which allow me to sort of almost just about but not quite cover all of my basic bills. Of course, they don’t allow for “extras” like a vacation, big car repairs, a new used car when mine eventually bites the dust, or medical treatments that aren’t covered by insurance, and even without those things the money isn’t enough. So of course the solution is to try and earn money. Yet I am under such scrutiny that this is nearly impossible. And even without earning money, just living life is far too complicated because of the scrutiny.

The benefits cliff is not a new topic. It’s counter-intuitive to helping people get off of benefits. There’s an all-or-none setup that doesn’t work because my health is not all-or-none. Some months I can do more, some months less. Why should I be punished for that? But I digress.

I am not talking about the absurd benefits cliff itself, but about the intrusiveness of the entire setup. It is invasive and insulting.

I no longer have any financial privacy. Multiple benefits offices have me fill out detailed and intrusive forms. They look not only at my taxes, but also at my bank statements, including PayPal and Venmo. They question every deposit. For some, I am required to provide proof of the purpose of each deposit. When I can not show a cancelled check because my bank no longer provides these on bank statements, I must then pay to get them from the bank. When a friend gives me money, the office expects a notarized statement as to its purpose.

Seriously? I’m supposed to ask friends and others to notarize a statement about why they paid me?!? And about about strangers who send me $50 via PayPal or Venmo for buying some random thing that I’m selling? This is completely unrealistic, not to mention embarrassing! How exactly am I supposed to ask for this?

Example: “Do you remember how seven months ago I paid for that gift for Susan? And you know how you reimbursed me for your half the next day by Venmo? Could you give me a notarized statement that you weren’t paying me for anything but were just reimbursing me? I’d rather not say why.”

Yeah, right.

Then there’s actually trying to earn money. The limits for what I can earn without losing my disability benefits are really low – lower than my actual benefits. But long before I hit that number, there’s another number that’s scary: the one that triggers greater scrutiny from the government. Technically, reaching that number every month shouldn’t be a problem. After all, I wouldn’t be earning enough to get kicked off benefits. Still, we all know that the last thing we want is more attention here, especially these days, so I want to avoid getting anywhere near that number. Why give prying eyes more reason to examine me?

I am hugely resentful. Why can’t I simply try to earn as much as possible? Chances are I wouldn’t earn enough to get kicked off benefits (every time I have tried to work in recent years, I got a lot sicker and had to give up) but I would sure like to try and earn enough to buy some new clothes! And why can’t I simply live like a normal person who lays out the money for a shared birthday gift?

I get that the government wants to avoid fraud. They don’t want me getting benefits while also receiving $5000 per month from various friends and not reporting it on my taxes. But really, what are the odds of anything like that happening? Are there really going to be so many people on benefits who find a way to get enough money that doesn’t have to be reported on their taxes that it justifies this level of scrutiny? Would it really justify the salaries of the people paid for this scrutiny? Meanwhile, they make me explain that the $50 deposit into my checking account was a Chanukah gift from my aunt and no, I don’t wan to ask her for a notarized letter confirming that.

Now, let’s say someone was being deceptive. They received benefits they shouldn’t receive. The average SSDI payment for adults in 2020 is $1258 and the average SSI payments are $783 for an individual and $1175 for a couple. Meanwhile, we watch rich people and companies avoid paying millions of dollars in taxes. One rich person’s yearly taxes, if properly paid, would probably cover the lifetime disability benefits of quite a few people.

A lot of people find it unfair that they pay more in taxes than rich people do. I feel the same. But at the moment I am pissed that they get away with it while I need to justify every penny. Where is the scrutiny? I find it hard to believe the government couldn’t catch these folks if given the resources. Wouldn’t it make more sense to devote the salaries of staff to catch someone who owes millions, instead of focusing on disabled folks, the majority of whom are just trying their best to cover their bills?

A lot of people argue that the big difference is that disabled folks are living off of government benefits, so the government has to be sure that money isn’t being misspent. Uh huh. Tell me, do rich people not use government services? I’m pretty sure they use government infrastructure, their businesses benefit from people who attended public education, many of their businesses thrive because they pay such low wages that employees must use food stamps, and so much more. Many of them attended public school and some were even on food stamps themselves in the past. They benefit, even if their line is more squiggly than my direct one.

I am not suggesting that benefits should be handed out without any follow-up but maybe, just maybe, our current system goes absurdly overboard. I think we need a system where I can be reimbursed for laying out money for a birthday gift without having to jump through hoops.


How to value our lives

April 26, 2020

With hospitals becoming overwhelmed with COVID-19 patients, choices have to be made. Who will be treated first? If there aren’t enough ventilators for everyone, which patients will get one, and which won’t? This is a difficult conversation to have. Unfortunately, many places are putting policies in place which devalue the lives of people with chronic illnesses.

Part of the rationale is that people with certain medical conditions will take more care than people who are otherwise healthy. I understand that spending 10x more hours on 1 patient means that others will receive less care. Another part of the rationale is that the focus should people in the patients with the greatest potential health outcomes. If the choice is between saving the life of someone who is 70 or saving the life of someone who is 30, this reasoning says the 30-year-old should be saved because they are likely to live longer than the 70-year-old would, even if both recover fully. And if two 30-year-olds need treatment, one with a chronic illness and one without, the guidelines say to treat the one without chronic illness first. In fact, a ventilator may be taken away from the chronically ill patient and given to the otherwise healthy patient!

This is where these conversations often quickly devolve into which lives are most “worth” saving, both amongst policy makers and amongst everyone else. I have a lot of issues with this. Yes, I have chronic illnesses. Yes, my care could be more complicated than the care for someone who has no chronic illnesses. But does that make my life less worth saving? Does that make me a less valuable person?

In the chronic illness world, we say that our productivity does not determine our worth. That is so true. I’m biased, of course, but I think my life has a lot of value. I have not had a full time job in more than 8 years but, contrary to what many believe, that does not mean that I haven’t contributed to society in that time.

On a smaller scale, I am a good friend and daughter. I provide advice, let loved ones cry on my shoulder, celebrate good times, and more. I also do volunteer work in formal settings and provide help to many people in informal ways. (So many friends and friends of friends have sought my advice on how to approach doctors, how to research health problems, or even how to fix a computer problem. Earlier this month I even helped a couple of friends do their taxes.) I have written a book about chronic illnesses, I stop to hold open the door for strangers (pre-pandemic, that is), and I do random acts of kindness (like when a kid at the convenience store could afford the food he’d picked up, so I paid the balance – again, pre-pandemic.) I write this blog, which I believe helps people. Does it change the world? No. Does it change some tiny part of it? I hope so.

Why is all of this considered to be worth nothing simply because I don’t have a job? Infuriatingly, people are arguing that’s the case.

And what if you can’t do any of the above? Your life still has value, and you deserve to be treated as such. These are just examples from my own life. I’m sure you can offer your own examples, past, present, or aspiring to in the future.

What’s more, why should someone be treated as “better” because they are “healthy” and work full time regardless of other factors? Is a CEO who earns millions while harming others somehow superior? What about people who are racist or homophobic but work full time? What about people who steal or assault others? What about those who are just plain mean? Why is working at a job so often a litmus test, while these other factors are completely ignored.

To be clear, I am not suggesting that patients must pass tests to prove they are “good” people before receiving treatment. I am simply pointing out that there are many factors that *could* be used when the conversation turns to who is most “worth” saving, yet so often people talk about folks who receive government benefits and who do not work at jobs as having less perceived value. This hurts. They are saying that I have less value. They are saying that people I care about have less value. They are saying that we should be allowed to die so that someone else might be saved, and that this choice is being made solely due to our having chronic illnesses.

That is why I am standing up today to say that I have value. And so do you.