Medicaid makes me so damn mad

August 16, 2012

Medicaid makes me so damn mad!

Our entire healthcare system in this country is so incredibly broken.  Now, I’ve heard mixed things about healthcare in other countries, but since I’ve never lived in those countries I can’t comment on their healthcare.  My guess is that in most industrialized countries the healthcare is better than what we have here but it still needs improvement, but that’s just a guess.  What I do know about is the broken system in the United States.

I could rant about many different aspects of healthcare, and I have, again and again, but right now I’m thinking about Medicaid.

First, there was a posting in the forum of a personal finance web site.  Personal finance is a hobby of mine, and it often intersects with the health stuff (like in reducing expenses and paying for medical care, etc.)  This particular posting was from someone with a very low income who was wondering how she could possibly afford health insurance.  Several people suggested that she apply for Medicaid and they didn’t realize that in many states, including hers, she isn’t eligible for it.  In some states, people without children simply aren’t eligible, regardless of their financial or medical status.  This is absurd.  Why on earth is this being handled on a state-by-state basis?  When people assume that eligibility requirements are looser than they are, it skews their political beliefs, not to mention their view of their own safety net.  The American public needs a lot of education about this.

Then I applied for Medicaid in my own state.  Thankfully, in Massachusetts a single person can be eligible for Medicaid.  Of course, just because I can and should be eligible doesn’t mean I’ll get it, and if I do get it, I have no idea which of the many plans I would be offered.  This means that I don’t know if I’ll lose my PCP or not.  If I lose my PCP, then I won’t be able to get referrals to my specialists.  That means I would not be able to get my prescriptions.  Then I’d be screwed.  Shit.

I follow politics closely and so I am very aware of the current healthcare debates.  The Republicans were all for healthcare reform until the Democrats enacted it.  Now the Republicans want to repeal it simply because they want to hurt the Democrats.  WTF?!?!?!?!  Since they can’t repeal healthcare reform right now they are doing what they can: many Republican governors are refusing to expand Medicaid, even though they would get complete federal funding at the beginning and quite a large federal subsidy thereafter.  In looking to hurt the Democrats, they are hurting their own citizens.

And then there was this article.  Who on earth thinks that the yearly income limit for Medicaid should be less than the yearly premiums for health insurance?!?  Whether or not you believe that Medicaid should exist, can anyone really argue that as long as it does exist, it should be available for those who need it?  What’s the point in having a system that the people who it was designed to help can’t access?

This is madness, I tell you, madness!!!

I admit that I don’t have all the answers, but I would like to suggest a few anyway.  Please bear with me.  First, Medicaid, like Medicare, needs to be offered on a federal level, or at least it must be subject to federally-mandated minimums.  Clearly states can not be trusted to handle it.  Anyone who thinks that non-parents do not “deserve” healthcare as much as parents needs some serious help.  Also, Medicaid should be used to fill in the gap of people who want health insurance and who truly can not afford it.  If you don’t earn enough to cover basics like rent/mortgage, food, and health insurance, then you should be covered.  Finally, Medicaid reimbursement rates need to be increased.  I’m not suggesting that every medical visit warrants a four-figure reimbursement, but medical facilities must receive reimbursement that at least covers their costs so that they will continue to take on Medicaid patients.  The system doesn’t do the patients any good if reimbursement rates are so low that all doctors refuse them, and that’s what’s happening now (which is why I may lose my PCP.)

Like I said, I don’t have all the answers, but I think this would be a good start.  I’m sure you’re wondering how we’d pay for this.  Well, I don’t know, but let me ask, how are we paying for Medicare?  How much are we spending on graft and fraud?  Isn’t it worth keeping our citizenry healthy so that they can continue to work and thereby pay more in income tax (and probably sales tax too, since they’d be able to spend more?)  Personally, I need health insurance and social security so that I can focus on getting healthy.  Yes, some people may never recover, but there are others (and I sincerely hope that I’m one of them) who can, and who will gladly return to the workplace and to paying their fair share of taxes so that others can enjoy the support of the same system that helped them to recover.  Now that’s a system I’d like to see.


Good bye nausea, hello diet

August 15, 2012

Yesterday I said goodbye to the old diet and today I welcome the new diet – AT LAST!

There’s no doubt that the old diet helped – I felt soooo much better within a week of starting it.  But I think I could be doing even better than I already am.  And on top of that, I can bring back a whole lot of foods that I love (pasta sauce! popcorn!) and sure I have to give up a lot of foods I really enjoy (peanuts, broccoli, quinoa) but at least now I know that I’m on the right track.  Ok, sure, the tests aren’t 100% accurate, but it should be pretty damn close!

No, this won’t be easy, but what the hell is?  It’s WORTH IT!  I think that’s something that “healthy” people don’t understand.  A few have said to my face “Oh, I could never be gluten-free.”  To them, the option is to eat foods they love or to give up those foods.  To me, the option is to suffer nausea, diarrhea, abdominal pain, cramping, and fatigue on a regular basis, or to give up some foods that aren’t necessary for my survival.  When you look at it that way, it’s not much of a choice, is it?  So now I’ll give up a few dozen foods on top of gluten.  Some will be temporary and some will be permanent and I really don’t care – I’m just so glad to have a plan!

By the way, for anyone who’s wondering, the mold and herb tests came back with a few minor reactions but nothing much, and I only have one strong chemical reaction, so I’ll be checking all of my cleansers and nail polish (luckily I don’t wear makeup!) to make sure I’m not getting exposed that way.  For me, the big results were all in the food categories, which was really no surprise.

So now I want to say a big THANK YOU to everyone who has helped me.  My parents have been the most amazing, supportive people I could hope for.  Several incredible friends stood by my side offering advice and comfort.  My grandfather generously paid for the test when insurance wouldn’t cover it.  My naturopath suggested the test and went out of her way to get me a discount.  And so many readers have emailed, commented, and tweeted with advice and support.  Thank you everyone!  Let’s face it, in the CI world celebrations can be a bit too rare, so I’m thrilled to have a good reason to celebrate today.  This is only one step in the journey, but it’s a big one!


Little red dots

August 7, 2012

I have pale, smooth skin, so it’s always been easy to spot new freckles or scars.  A month or two ago I noticed a red dot.  Then I noticed some others.  This isn’t a rash.  They are not clumped together.  They do not feel itchy.  They are not raised.  There are a bunch on my arms and more on my legs.  There’s one on a boob.  My first thought was that it has to do with capillaries.  But that’s as far as I got; I really don’t know anything about skin stuff, except how to watch for something potentially cancerous.

As long as I was at my rheumatology appointment today anyway, I figured I’d show her the spots.  She said the same thing: capillaries.  She told me to see my dermatologist.  Damn.

So should I bother?  I’m overwhelmed with all of the medical stuff.  This isn’t harmful, but we want to make sure it isn’t indicative of something else.  To see my dermatologist I’ll need to get a referral from my PCP.  And I’d need an appointment before my insurance runs out in a month.  A MONTH!  Ok, deep breaths.

And that goes back to the main problem: I’m overwhelmed.  I hope to get my medicaid paperwork in the mail by Thursday, and I’m determined to finish the letter for the LTD appeal by Thursday too.  And then I need to start the application for SSDI.  Plus I should get some important test results soon and that will mean new treatments.  And what about all the other doctors I’m seeing.

I love my dermatologist.  She’s very capable and she’s sweet.  I always feel good about her work.  But I don’t want to see her right now.  It’s one more thing, and it might be one thing too many.  And for what?  To find out that this is nothing?  Because it’s almost definitely nothing.  But then, what if it isn’t…..?


Procrastinating into misery

August 4, 2012

Procrastination is a tricky thing.  I went to a great seminar a while back on how to avoid procrastination.  I’d love to say that I use those techniques all the time, but the truth is that I’ve mostly forgotten about them.  I sure remembered them today, though.  I had no choice.

The main idea that the presenter wanted to convey is that we procrastinate out of fear, and I think she’s right.  Often there’s a fear of failure, or a fear of not enjoying the process.  In my case, with this paperwork, it was a fear of confronting difficult emotions.  It was a fear of having to accept the reality of my situation.

So after a week of procrastinating, I finally read and signed the new contract with my lawyer.  I don’t know if she will be able to succeed in winning the LTD insurance appeal, but it’s worth the effort and the money to try.  And after a week of dreading this, of thinking about it and then avoiding it, it took very little time and effort to just do it.  And I could finally move on!  Why didn’t I just do that a week ago?

Even worse in my mind was applying for Medicaid.  I am so lucky that I am potentially eligible for Medicaid in Massachusetts, because I know that would not be the case in so many others states.  And I know that I need to apply this week, based on the timing of when my current health insurance will end.  After many weeks of coming up with semi-legitimate excuses to put off the application, then a week of completely absurd excuses, I finally sat down to do it today.  Today was the day to get this done.  No more excuses  And I did it!  It was much easier than I expected and it really didn’t take that long after all.  Yes, it sucks to have to need this, but it’s better than not giving myself any options.  It took very little effort and it’s now almost done.  I just need to call the office on Monday to clarify a few things, then I’ll be ready to print it, sign it, and mail it!  Again, why did I just do this weeks ago?

Being too sick to work means having to do a lot of extra paperwork and other shit.  I can’t get around that.  But I can get around the extra strain of having it hanging over my head for weeks or months by just getting off my ass and getting it done.  It may not be easy to do this, but it’s better than procrastinating more!

Next up is SSDI.  I’ve been putting this off for months and now I can’t wait any longer.  I am not eligible to receive benefits for many months still, but the sooner I apply, the better off I’ll be.

So this is my public announcement that I will not procrastinate on SSDI or any of the other crappy illness-related paperwork.  From now on, I will get it done as soon as I can.  It may take a while, especially when I have a string of bad days, but I will do the best I can to get it done as soon as I can.  And I hope that makes everything just a little bit easier.  Please feel free to hold me accountable!