A gluten-free dairy-free whoopie pie kind of day

December 13, 2012

I don’t believe in emotional eating, but that doesn’t mean that I don’t do it.

This is a difficult time.  My insurance appeal has been submitted and a response is due back within the next two and a half weeks.  The response could be that they need an extension, but it could also be a yay or nay on the whole thing.  My social security appeal is floating around out there somewhere, with no response deadline on it that I know of.  And worst of all, a close relative is dying a slow, painful, excruciating death, and there is nothing we can do about it.

WhoopiePie

I think that I handle stress fairly well.  I used to be rotten at dealing with stress, and when the doctor who diagnosed me with auto-immune illnesses told me to cut down my stress levels, I laughed.  I thought he was kidding.  Doesn’t everyone want to reduce their stress?  Does he really think it’s so easy?  But over the years I’ve learned that I absolutely must keep my stress down if I want to avoid flares and other problems, and I’ve done that pretty well.  Unfortunately, there are some stresses in life that just can’t be avoided.

I’ve been watching this relative die slowly over the past year.  A year ago it was bad.  Now it’s beyond words.  Even though it’s hard when she doesn’t recognize me, it’s worse when she’s lucid; it’s worse when she’s aware of how bad it is.  In her lucid moments, she has made it clear that she’s done, she wants to die now.  She’s past 90, with a terminal illness and no hope for recovery.  Her life-prolonging meds have been stopped.  Unfortunately, Massachusetts does not have a right-to-die law (and the ballot question for it narrowly failed last month) so there will be no peaceful end.  Instead, she is growing weaker and weaker.  Breathing is hard.  She has 24/7 care, but now that is not enough.  One person is no longer enough to get her to the bathroom, for example.  Before, one person could help her stand up, and she could balance while holding on to something while they pulled her pants down.  Now, she is not strong enough for that, and instead she must relieve herself in an adult diaper.  What way is this to end the life of a woman who was strong, independent, vivacious, and wise?

As I read the email with the latest updates today, I desperately wanted something sweet.  Normally I try to avoid emotional eating, but I let myself do it in extreme circumstances.  This is definitely extreme.  I haven’t bothered learning gluten-free baking yet, so there was nothing in my house.  I’d heard there were gluten-free bakeries in a town near me, so I went online and looked around, then I made a few phone calls to confirm.  I ended up at a bakery only 1/2 mile from another errand I was running.  I wound up with 2 gluten-free, dairy-free mini whoopie pies.  They are not the best I’ve ever had.  I had a gluten-free, dairy-free whoopie pie a couple of months ago that was much better, but that was in another state.  Still, the fat and sugar triggered those parts of my brain that made me feel a bit better.  They don’t fix things, but they sure do help.  I devoured 1/2 of the first whoopie pie while I sat in the car, then took my time eating more of it later.  Since I don’t eat sweets anymore, a little bit goes a long way.  Hopefully these will last a few days, because I don’t see my life getting any less stressful in the near future, especially as the family starts funeral preparations.

Sometimes life stucks.  Sometimes life is stressful.  Sometimes it all feels wrong.  For those times, thank goodness for whoopie pie.


Limbo sucks

December 10, 2012

I hate being in limbo.  I’m not talking about the game with the broom handle.  I’m not talking about religious limbo.  I’m talking about being stuck in life, with no control over the outcome of a situation or of when the outcome will even arrive.

There are small kinds of limbo, where I’m just being indecisive.  Should I cancel my plans for tonight?  I hem and haw and Limbocan’t decide, and then I get this email from a friend:

“I saw on Twitter that you’re in rough shape. Do you want to cancel/reschedule tonight?”

She sent that today.  Totally awesome.  That’s someone who gets it.  But I digress.

Right now I’m talking about the big kinds of limbo.  I like to plan.  We never know what will happen in life, but we can figure out different ways to handle possible situations, right?  So if I quit my job and it takes too long to get a new one, I can do temp work, or do consulting, or get a lower-paying job to handle it.  That was a situation I planned for several years ago.  I didn’t entirely have control over when I’d get the “right” job, but I had control over my responses to the situation.  Besides, I wasn’t totally without control – I knew that I could always take a lower-paying job if I needed to.  That was reassuring.

My current limbo is much more sucky.  I’m waiting for a decision on this damn insurance appeal, and until then I can’t do anything.  I can only make basic plans: if I lose, I’ll move in with my parents and if I win I’ll look for a cheaper place to live.  But I can’t apartment hunt yet.  I can’t start packing.  I don’t know if I’ll be able to afford to finish out my current lease.  I don’t know if I can afford to buy clothes or to go out with friends.  I don’t think my health is good enough to do part-time work or take a class yet, but even if it were, I’d worry about that messing up the appeal.  I can’t plan for a future career, because I have no idea when or if I’ll ever be able to work again.

Six months from now I’ll probably be living someplace else, but I can’t plan for it.  My health could be very different, but I can’t plan for it.  My financial situation will have been determined for the immediate future, but I can’t plan for it.

I’m stuck.  I’m sitting in limbo waiting for some unknown stranger to decide the direction my life will take.  And it sucks.


A new low: suppositories

December 5, 2012

About a month ago I wrote about some of the varied “gross” aspects of my health issues.  These have set a whole new standard of “grossness” for me.  I don’t think twice about some things that would make other people really cringe.  And yet, this week’s prescription of suppositories really got to me.

I have had gastrointestinal problems for many, many years.  I’m not even sure when it all started, but I’d say it’s been around 18Suppositories years now.  That’s 18 years of pain, cramps, diarrhea, constipation, gas, heartburn, and nausea.  Oh, and fear.  Definitely don’t forget the fear.  There were so many nights I lay on the bathroom floor, doubled up in agony, wishing the pain to go away.  There were times I hoped I’d die.  I have spent countless hours dealing with this stuff over the years.  At times, it has felt tortuous.  Sometimes, it was worse than any of the other pain I had throughout my body.

So that’s some basic background on why GI stuff is a sensitive area for me.  I guess a lot of people would have emotional issues after 18 years of that.  Thanks for getting through that.  As a reward, here’s a more fun example of my emotional response.

I love sex.  I miss sex, but that’s a subject for another day.  Today’s point is that I love sex.  While I’m not ultra kinky, I’m definitely somewhat kinky, and I’m open to trying a lot of new things.  I’ve been tied up, spanked, and part of a threesome.  I’ve tried a lot of different positions.  I’ve had sex in public places.  I’ve taught my partners to be more kinky.  I’ve taught my partners new positions and techniques.  I’ve worn a collar, used toys, and made all sorts of sounds.  It’s not like I’ve tried everything, but I’m open-minded.  I only have three rules: (1) I’ll only have sex with consenting adults (2) I’ll only have sex with people I trust (3) I won’t let anyone do anything ass-related.  Yeah, that last one is a bit of a surprise, right?

So if I won’t let anyone put anything up my ass for sexual pleasure, do I really want to do it with a medication?  I mean sure, the affects of the med should last longer than an orgasm.  And maybe the med will help me get healthy, which will get me to the point of dating again, which means I’d start having sex again, which would be fantastic.  But that’s a lot of “ifs” and really, she wants me to stick medication up my ass!

After 18 years of pain and everything else, I just can’t stand the idea of using that out-hole as an in-hole.  I can’t do it.  I have rearranged my life for my health.  I left my job.  I started an intense diet.  I stopped dating.  I limit social time with friends.  I limit time with family.  I take a huge assortment of medications, supplements, and homeopathic remedies.  But I can not, I will not, stick anything up my ass.

I finally told my doc of my emotional discomfort with this so she gave me an alternative: it can be inserted vaginally.  Bingo!


How would you spend lotto winnings?

December 3, 2012

This has been a tough week, so instead of writing about trying to avoid germs while visiting a sick relative in the hospital, I want to focus on something ridiculous: winning the lottery.

If you were in one of the Powerball-participating states last week, or even if you weren’t, you probably heard about the record lottery jackpot.  I believe it was around $579,000,000.  That’s a whole lot of zeros.

The odds of winning the jackpot are extremely slim, but many thousands of people still took their chances.  Of course, their chances were miniscule, but still larger than mine since I didn’t buy a ticket.  With or without a ticket, I think this huge jackpot being constantly talked about made us all wonder what we would do if we won that kind of money.  I did, at least.  I couldn’t help it.  Thoughts of bit lotto spending kept creeping to mind.

Over a year ago I wrote about what I would do with more money.  I just reread that post, and found it interesting how some of my goals are the same but some have changed.  A big goal then was to work less than full time.  Of course, that was before I knew that my disability leave would be long-term.  Now, I just want to not have to stress about a lack of income.  I also mentioned what I was spending at the time: under $30,000 per year.  Now, I spend a lot less, even though I spend significantly more on medical expenses.  These days, I hesitate to spend any unnecessary money at all as I watch the numbers in my bank account getting lower and lower.  I’m putting off buying new winter socks, for crying out loud!  Of course, with $579M I suppose I could afford all the new socks I wanted.  Still, I would want to have enough to live comfortably, and then I would be so happy to give the rest away.

The big difference in my thinking between the last post and this one is how I would give away the money.  With a lot of free time, and the inability to be very active, I have been doing more reading than ever.  Among other things, I have become more aware of many of the problems in the world, and also more aware of the various attempts at solutions.  I want desperately to fix so many of these problems and I wouldn’t know where to begin, even with seemingly limitless money.  I suppose the key would be to find experts in each area and get their viewpoints.  How amazing would it be to fund disease research, help end human trafficking, and promote programs to get young girls involved in math and science?  That sounds like a fantastic way to spend each and every day.  It would be a dream come true.

*Sigh* I don’t expect to ever have a nine-figure sum in my bank account, and that’s ok.  I honestly don’t want to have that much money anyway.  But it would be so nice to one day be able to earn enough money to pay for all of my basics needs and some wants, and to be able to earn it by working at some fabulous nonprofit that’s helping the world.  I’ve done that before, and I miss it.  I hope so much that that happens again one day…..

In the meantime, I’ll try to save up for some new, warm socks.