If you think it’s so easy, then *you* try it!

January 30, 2012

What is it with people saying that what I have to do really isn’t so bad?  Unless you’ve gone through it yourself, you just don’t get to say that.

The latest is that I think I need to try a gluten-free diet.  I’ve been putting this off, but from what I’ve researched, it’s worth a try.  Nothing else is working, after all.  I figure I’ll live it up for a couple more weeks, until I see my PCP for a checkup, and then I’ll talk to her about getting a referral for a nutritionist, because I sure as hell am not doing this myself.

I was telling all of this to a friend, and she said that getting a nutritionist is good, but that really, going gluten-free isn’t all that hard.  Now, we’ve been friends for ages and I love her, and I know she can be a bit know-it-all, but that’s just who she is and I accept it.  But today was annoying.  Going gluten-free is a big, big deal for me.  I have such a restricted diet already, and this will make it harder.  Cooking at home will be a pain in the ass.  Even worse, going out to eat will be horrible.  Yes, there are dishes at restaurants that appear to not have gluten-containing ingredients, but if they aren’t marked “gluten free” then they could be contaminated.  She didn’t get it.  And what about eating at other people’s homes?  When I go to a party, I can avoid the bowl of chips, and I can ignore the cheese and crackers, but what about main dishes?  Will I have to eat at home before every party?  Ok, I do that now from time to time, just in case, but to always do it?

Now, I know there are plenty of people on gluten-free diets.  I know they are successful at them.  I am not saying that it can’t be done.  I’m just saying that, especially at the beginning, it will be very difficult, and I resent being told that it won’t be by someone who’s never done it.

It’s like when someone tells you how to compensate for not being able to do stairs, even though they’ve never been in that position.  You can’t say it’s not hard unless you’ve done it yourself, and even then you can’t assume that your experience applies to everyone else.  We’re all different.

So I’m being patient, because I love my friend and I know that she only means well.  She’s trying to help.  But damn, it can get annoying to hear that kind of stuff.

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Coffee table: 2, me: 0

January 19, 2012

Today was incredibly eventful.  I have a lot to write about.  And I won’t write about any of it.  Maybe tomorrow.  You see, I’m a bit distracted by the dull ache at the back of my head.

I was having an unusually productive afternoon.  I had to take a quick bathroom break, and my mind was churning as I got up to walk across the living room.  Unfortunately, that meant that I forgot to put on my slippers.  I also forgot that earlier in the day the hardwood floors had been slippery for some unknown reason (but probably from some work the super was doing in my apartment a few hours earlier.)

In my socks-clad feed, I walked across the living room, in the direction of the bathroom, still thinking about the project I had been working on.  Suddenly I felt my legs in the air.  There was a pain in my leg.  Then I realized that I was going to hit my head… and there was nothing I could do.  A second later I was on the floor.  I heard a scream; I supposed it came from me.  I waited to see if anyone came.  They didn’t.  My neighbors were probably at work at that time of day.  Shit.  I held my hand to my head for a long time.  I checked my leg – scraped skin but no blood.  I’ve bled from hitting that coffee table before.  And this time my head hit it.  I finally forced myself to look at my hand… no blood!  Whew!

I knew someone should check my head, and I’ll be damned if I go to the emergency room for anything less than an emergency.  I did not lose consciousness, the dizziness only lasted a few seconds, and I wasn’t bleeding.  Nope, no hospital for me.  But I had a wicked headache.  (Yes, in Boston we say “wicked.”  Get over it.)  So I did the logical thing: I called the super.  He’s a nice guy, very sweet, and we chat a lot.  Obviously, this was not in his job description at all, but he came running right up, the sweetheart that he is.  He found my scalp, and said there was just a small bruise.  He thought to take a picture of it with my cell phone (gee, why hadn’t I thought of that?  I must have been really dazed) and I saw that it really was just a small bruise.  No blood.  Nothing too horrible-looking.

A few ice packs later and both my leg and my head hurt.  A lot.  Tylenol helped.  But tomorrow will be the real test.  So yes, I’m a bit distracted by the dull ache at the back of my head.  On the bright side, I’m not focusing on my big doctor appointment this morning.

Time to ignore it all with the brain equivalent of ice cream: tv!  And more Tylenol.  Definitely more Tylenol (or whatever the CVS equivalent is.)  Sweet dreams y’all!


The medicine of a simple visit

December 17, 2011

Knowing that I’ve been stuck at home a lot, my parents came over for a visit today.  They don’t live very far away, but they rarely visit.  Usually when we see each other it is at their house, where I grew up.  Since I’ve been staying closer to home, they came over for a visit with their pooch.

It was a simple visit.  We talked, we took a walk, we had dinner.  I pet the dog.  I played with the dog.  I sat with the dog.  It was an easy visit.  Today was a good day, and I felt up to moving around, which was great.  Having company was fantastic medicine.

When you’re fatigued, in pain, or otherwise stuck at home, remind your friends and family that visits can help.  So many of us get offers of help, but the truth is, I don’t always need help with errands or cooking, sometimes I just need some stress-free, activity-lite time with loved ones.  We all need to be alone at times, but we also all need to be around the people we care about and who care about us.  Sometimes it’s just that simple.

 

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Getting back the unintentional smile

December 15, 2011

This past month has been a real bitch.  Fatigue sucks.

One of the hardest parts has been feeling so down all the time.  Sometimes I couldn’t tell if I was sad or tired or depressed.  I knew I didn’t have my usual pep.  I’m generally a happy, cheerful person, and that was definitely gone.

Today should have terrible.  I over-exerted myself last night and went to bed too late.  I was woken up very early by outside noise, and forced to get out of bed.  I should have been a mess, but I felt ok.  I actually felt pretty decent.  How odd.  It took me longer than it should have to get out of the house, but I tried not to pressure myself too much, and hey, at least I made it out before lunchtime!  I took a quick walk down the street to the library and CVS, then came back home for lunch.  And I wasn’t exhausted.  Weird….. Good… but weird.  Even stranger, I noticed random people on the street smiling at me.  A few made random comments (Good morning. Did you see what that driver was doing?)  I didn’t feel any happier, but I did feel that the cloud was starting to lift.  Maybe strangers saw it too?

I really needed to do something about Prednisone boobs, so after lunch I drove to a store I like that carries unusual sizes and tried on everything they had that was an option.  I should have been exhausted, but I wasn’t.  I was a bit tired, but ok.  I made friendly chit chat with the woman helping me.  Hmm… that feels more like me.  It felt good to be friendly and pleasant again.  And she was pleasant back.  And hey, I was smiling!

On the way home I stopped for groceries.  It was late afternoon and the store was getting crowded.  I took my time finding the right items, asking a clerk for help, trying hard to make sure I’m keeping a healthy diet (ugh.)  The clerk kept apologizing for taking so long to check in the back, for making me wait, for not having the item, and I kept assuring her it was fine.  I didn’t care.  I wasn’t in a rush.  Woah, it’s like the old me!  Not rushed (unless I had to be) and patient.  The checkout lines were long, but I was in no hurry (though beating rush hour would be nice.)  A new register opened up and the cashier asked me to come over.  I said not to worry, that I was fine waiting, and that the woman behind me with the very full cart and the obviously-bored child go ahead.  She looked incredibly grateful.  I felt good.  Hmm, I wouldn’t have done that a few days ago.  Ok, I couldn’t overlook that one, something was definitely different.

By the time I got home I was feeling it: I was tired.  Still, it wasn’t the fatigue I’ve been feeling lately, just the old kind of tired.  I sat and rested for a while.  I listened to an audio book.  I ate dinner and watched a movie and now it’s about time for bed and I feel… OK!  I FEEL OK!  I want to shout it from the rooftops.

This might not last.  Maybe tomorrow I’ll feel great, maybe tomorrow I’ll feel horrible.  I’m just so grateful for today.  These good minutes, hours, days, weeks, and sometimes months are such a gift and I’m so grateful for them.  Did I say that already?  Well it’s true.  Thank goodness for today.  I would have survived physically, but mentally and emotionally it was getting really tough.  I feel renewed.

I just hope it lasts.

And every day that this lasts, I will use it.  I will cross off items on my to do list, I’ll write, I’ll clean, and more importantly I’ll help others.  Maybe I can’t do volunteer work at a charity or help a friend move, but I can let someone cut ahead of me at the grocery store, and for now, that’s enough.

 

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