Where should I put my body?

February 11, 2016

 

I’ve been sitting too much lately. Way too much. I see all of those studies that say sitting is as bad for our health as smoking and I think, it’s not like I have much of a choice. Still, something has changed.

I used to sit a lot and knew I didn’t have a choice, and it felt right, even though my brain said it wasn’t good for me.

Now I sit a lot and it feels wrong. It feels like too much sitting. My brain said it’s bad for me, but so does my body. My back hurts. My neck hurts. I know I’ll feel better if I move around more.

The problem is, moving more would help my neck and back, but not the rest of me. I don’t have the energy to move more. I do what I can, but between my adrenal problems and everything else, I just can’t do more activity. It would be really bad for me. Recently I had a few days where I did more because I felt up to at the time, and then I paid for it the next day. So I know I need to dial back a bit.

The thing is, it still feels wrong. I sit in front of the computer or on the couch watching tv or in a comfy chair with a book and I’m happy with the reading or writing or watching, but my body hurts in ways that are specific to doing too much sitting.

What’s the answer? I don’t know. I don’t have the energy to walk more. Laying down would hurt in different ways, and would definitely harm me emotionally. Sitting makes the most sense, but it’s too painful.

What about you? Have you had this problem? Do you have any ideas of what might help? Please share your ideas in the comments. I’d love to hear them. One of you might just solve this problem for me and for others who read this!

19 Comments | Educating, Expectations, Fatigue, Frustration, Limitations, Pain, Rants, Symptoms | Tagged: , , | Permalink
Posted by chronicrants

10 great things about you

February 7, 2016

Sometimes with chronic illness it’s easy to focus on the bad stuff about ourselves and forget the good stuff. I’ve done it far too many times over far too many years. A couple weeks ago I wrote about chronic illness and self-esteem. Based on the response to that 2015-07-09 12.01.45and other articles I’ve written about this, I think a lot of you know what I’m talking about and you’ve had the same problem.

So today we’re changing that. I want you to do two things.

First, write down 10 great things about yourself. Write them, type them, record them, dictate to someone else who will write them. Your format doesn’t matter. Just do it. If it’s too hard, then start with 1, build up to 3, and try to get 10 over the next few weeks. These aren’t about your looks but about who you are as a person. Think about what makes you great. Keep that list and reread it every month, every week2015-11-01 14.07.39, every day, whenever you feel down – or whatever works for you. Add to it whenever you think of something else that should be on the list. When someone compliments you for something specific, add it.

Second, write at least one of those things in the comments below. You can write more than 1 if you want, but please share one. This 20120917_181648will help you and others in so many ways. It will show others that it’s possible to still be awesome when you have a chronic illness. It will give them ideas of things that are great about them, too. And when you declare to the world (or at least to the readership of this blog) that you love these things about yourself, you’ll be taking it heart and believing it more strongly than ever. So go for it!

To be fair, I figure I should probably share my own list. So here goes.

  1. I’m a good daughter, always there for my parents and helping them when I can.
  2. I’m a good friend. Even when I can’t do much physically, I listen, I offer advice, and I’m there for my friends.
  3. I’m a great crocheter.
  4. I go out of my way to help others, even people I don’t know very well.
  5. I’m a good cook. Ok, I have a limited range, but I do a good job with what I know.
  6. I’m strong. Life has made things tough for me, and sometimes I’ve given up temporarily, but eventually I always go back to trying hard to get better (or to at least not get worse.)
  7. I try my best to be a patient and health advocate for others.
  8. I’m good with kids.
  9. I’m interesting. I read a lot and have different hobbies, so I always have a variety of things to discuss with people. (Hint: this is handy for changing the topic when I don’t want to talk about my health.)
  10. I appreciate nature. Put me at the shore and I can happily sit and watch the waves for hours. Even pictures of trees make me happy. I always stop to smell the roses (literally!)

Ok, now it’s your turn. Take some time and create your own list. And remember to reread it whenever you feel a bit down.

17 Comments | Healthcare, Isolation, Limitations, Milestones, Raves, Relationships: Family & Friends & Dating & Sex, Support | Tagged: , , | Permalink
Posted by chronicrants

Chronic illness and self esteem

January 25, 2016

It can be hard to maintain your sense of self, much less feel good about yourself, when your whole life gets flipped upside down.

I didn’t have any self esteem problems around my chronic illnesses in the early days. That was partly from denial, partly from the illnesses not having too big of an effect on my life, and partly from having a wonderful mother who raised me to be full of confidence and self esteem.

I’m not sure when that changed, exactly, but I’m pretty sure it was around the time I had to stop working. Suddenly, when people asked “What do you do?” – a very common question to ask someone you’ve just met around here – I didn’t have an answer. I didn’t have a job. I wasn’t earning a living. I was constantly unsure of when I might have to move. I couldn’t do much activity. I had a ton of food restrictions And on top of all of that, I just felt like shit.

There were times I wanted to be there for my family or friends and couldn’t be. I couldn’t travel anymore to visit the ones who were farther away and I didn’t always feel up to doing things with the ones who were local. I wondered “Why would anyone want to date me?” even while I knew that was a horrible frame of mind.

Now I’m on the other side of that. I did some small bits of volunteer work from home. I found ways to be there for my friends that required less of me physically. I used the phone and video chat. If a friend needed help with something, I would research options for them online, from the comfort of my couch. I focused less on all the things I couldn’t do and more on the few things that I could. I realized just how many different interests I have, even if I can’t work on them every day. And I started to wonder “Why wouldn’t anyone want to date me?” I started to remember what makes me so great.

But today was the real deal. Today it really hit me. A friend texted me about wanting to set me up with a guy she’d met. She told me a bit about him. Then she said that she’d told him I have chronic pain. She’d told him I can’t eat gluten. She’d told him these things and I hated it, but not in the way I used to.

Not that long ago I worried about telling anyone about my health issues. I wouldn’t have wanted him to know because I was so insecure. I wouldn’t have wanted him to only focus on my health issues, and I would have assumed he would because I focused on my health issues. I would have assumed they’d be a problem because I saw them as a problem. Today was different. Today I didn’t want him to know because I didn’t feel that should come from someone else. It should come from me so I could present it properly. I didn’t want him to focus on it because I wanted him to see all the awesome stuff about me first. I didn’t want him to think I was only my illness because I no longer think that I’m only my illness.

He called right before I wrote those last few paragraphs. We had our first conversation. He did bring up the pain and gluten stuff. I said a bit, but I mostly brushed it off. Before I would have brushed it off because I was scared to talk about it. Today I brushed it off only because there were more interesting things to talk about.

Yes, my chronic illnesses are a huge part of my life. But they aren’t the only part of my life. They define big parts of me. But they don’t define all of me.

I know better than to assume my chronic illness-related self esteem issues are 100% in my past. But I hope they’re mostly behind me. And when they come up again in the future I’m going to reread this. Because we all feel less than stellar about ourselves sometimes, and if that happens from time to time it’s ok, but it shouldn’t be happening all the time. If it does, we need to find a way out. For me, that way is to help other people because it makes me feel so much better about myself to be able to do something for someone else; and it’s also to have a hobby that has nothing to do with my health, because that focus not only gets me out of my own head, but it gives me something to discuss with other people that has nothing to do with chronic illnesses.

What about you? What makes you feel better about yourself? And will you be doing more of it in the near future?

7 Comments | Expectations, Limitations, Milestones, Raves, Relationships: Family & Friends & Dating & Sex, Support, Symptoms | Tagged: , , | Permalink
Posted by chronicrants

And no one knew I had health problems

January 18, 2016

I realized it part way through lunch, but I figured it was temporary. By the time everyone was done eating, it was nagging at me. It felt weird. And on the way home, it felt like something was missing. But when it happened again the next day, I began to wonder if this was how I was supposed to be feeling.

I went to two different potluck lunches this weekend. One was with people I’d never met before (I won’t bore you with the long story of how that came about) and the other was with a mix of friends, acquaintances, and people I didn’t know. And both times, I walked away without talking to people about my health problems. What the….???

Believe it or not, I’m one of those people who talks a lot. (Those of you who have been reading for a while probably just broke out in laughter. Of course I talk a lot.) I also talk openly. Sure, some things are private, but not as many as you’d think. If you read my older posts on this blog you’ll see the progression. I used to try and hide my health problems, and at some point I Just couldn’t do it anymore. It was exhausting, both physically and emotionally. So I started hiding less and sharing more. The more I did that, the better I felt, so I just kept on doing it. Put those two things together and pretty much everyone I meet figures out that I’m bi, that I’m Jewish, that I have health problems, that I love to read, and a ton of other random stuff about me. It’s not like I shout these things from the rooftop, but I make a random comment and it’s obvious.

Thanks to a combination of things I’ve been feeling a lot better lately (woo hoo!!) That’s how I was able to go to lunch two days in a row. It’s also how I was able to get through both lunches without talking about my health!

I was completely shocked. At the first one, one someone offered me food I just said thanks, but I have a lot of food allergies so I brought my own separate lunch. That’s it. No talk of Celiac or other autoimmune issues. We talked about a lot of things where my health never came up. It was weird.

The next day’s lunch was different. I should say that I didn’t talk to anyone about my health who didn’t already know about it. It did come up with one friend when we talked about me writing for this book project (you should totally write for it too!) Another friend asked how I was doing with my recovery from the surgery I had a few months ago. A couple people who were standing with her asked about it. But that really has nothing to do with my chronic illnesses. Aside from that, my health didn’t come up. Again, when people offered food I just said I had food allergies and I’d brought my own. That was it. It was straaaaange…….

I sort of liked it, but it also felt sort of wrong. I loved not standing out in the way that I usually do, even though that will take some getting used to. I liked being “normal.” It was a real treat! But the thing is, it also felt wrong because this is who I am. It’s not all of who I am, but it’s a big piece. In the last 4.5 years I’ve written 582 blog posts here. I’m working on a couple of other projects. It affects my sleep, my eating, my activity levels. It affects how much I date (or not), whether I work (or not) and how much time I spend with friends (or not.) This is a really big part of me that these people now know nothing about.

Then again, I only just met them. If I spend any significant amount of time with anyone, they’ll know. They’ll have to. Some days I can’t hide my symptoms even if I want to. Some days I can barely function. Still, this was a new experience. It’s been years since I got through a meal, party, or gathering without bringing up my health at all, and it just happened twice.

Huh. Maybe I should buy a lottery ticket. Because clearly something weird is happening.

What about you? Do you find your health becoming a topic of conversation at gatherings? Or do most new people you meet not know you’re ill (if your illnesses are “invisible”) or not know the cause (if they’re “visible”)? Please comment below. I’m curious to know how this goes for other people, and I’m sure other readers are curious, too.

4 Comments | Decisions, Educating, Expectations, Raves, Relationships: Family & Friends & Dating & Sex, Symptoms | Tagged: , | Permalink
Posted by chronicrants

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