Ready to be done

April 4, 2012

Ok, I’m done with these illnesses.  I’m ready to move on.  I’ve had it.

It takes a lot to make me feel like I’ve reached my limit.  And then I continue some more.  I’m stubborn and I don’t give in easily, even when I should.  That’s why I stayed at a bad job longer than I should have.  It’s why I stayed in a bad apartment situation longer than I should have.  It’s why I tried to make things work in a romantic relationship longer than I should have.  Ditto for a family relationship.  And hell, I didn’t even give up on my crappy car when I should have (but at least I didn’t go too long on that one.)

The point is, I keep fighting.  I keep fighting, that is, until I just can’t take it anymore.  Then I quit the job, moved to a better apartment,
gave up on the ex, stopped talking to the relative, and sold the car.  Those all make sense, right?

But what can I do now?  I’m feeling very done with all of the health crap.  I’ve done this for 20 years and I’ve had it.  I’m ready to move on to the next phase, but there is no next phase to move on to!  Or at least, there isn’t one that I have any control over.

We all get frustrated, and I know that for me this will pass.  Last night was a bad night of pain, nausea, pepto, movies, inability to sleep, and more pepto.  After a day or two of feeling ok, I’ll be less frustrated.  Then I’ll have a flare or something, and the frustration will return.  I just wish there was something I could do about it.  I wish I could walk away from this health crap like I walked away from that job.  Wouldn’t that be nice?

~~~~~~~~~~

If you can relate to this, please pass it along and share the camaraderie!  Thanks!


Considering a move

March 28, 2012

I’ve said it before and I’ll say it again: Boston’s weather sucks.

At least, it sucks for me.  In the winter my seasonal affective disorder (SAD) acts up.  In the summer, my autoimmune issues go wild.  Spring and fall are great, but they’re too short for my body.  And last summer pushed me to the edge.  I even looked for an apartment with central air conditioning.  I still wouldn’t have been able to go out much, but at least I would have felt better when I was indoors.  Unfortunately, anything close to the city was out of my price range.  I’ve known for years that one day I’d need to move out of Boston, to someplace that was healthier for me, but I’ve resisted.  My family and friends are here.  This is my home.

But recently some things have shifted.  I’ve been thinking more and more lately about moving.  There’s a lot in my life that I’m not thrilled with now, and I’d love a fresh start.  It’s not that anything is wrong really, it’s just that things are a bit stagnant.  I need to make changes, and I don’t think I can make them here.  And when I think about it, I’d love to try going someplace where the people are friendlier and the costs are cheaper.  And mostly I want to be someplace where I feel better.

So these thoughts have been going through my mind for a while, and then two big things happened last week.  First, we had two days of 80 degree weather.  That is not normal for March.  The temp was bad enough, but the dew point rose too – it was 56 and that’s close to my breaking point.  At 58 degrees I start having real problems.  So I felt really horrible.  And it’s only March.  Of course, this is New England, so yesterday it was 45 degrees and this morning there were flurries.  But this summer will be hot and humid, no doubt about it.

The other thing that happened last week is that a friend told me they were moving out of state.  My first reaction was to be sad they were leaving, but my second reaction was jealousy.  I was incredibly jealous that they were moving away.  Hmm, that’s not the usual reaction.  Maybe that’s telling me something.  Or trying to, anyway.

Last night I had dinner with them, and we talked a lot about it.  They’re moving back to the area he’s from.  They visit a lot and they have friends there, so they know the area and what they’re getting into, which is more than I’d have.  And they’re a couple, so they’ll have each other when they move, which is also more than I’d have.  But we talked about the desire to make changes, to start over, to reboot.  We talked about how exciting it will be to go someplace new (he’s lived here almost 30 years now, so it’ll be sort of new for him, and she’s never lived there.)  They showed me some rental listings they’re finding and the different neighborhoods they’re considering.  She’s on social security disability, so her money will go a lot farther there.  He works but doesn’t have a job in the new place yet.  Still, even if he takes a pay cut, they’ll be doing well.  So in less than two months, they’re going off on their new adventure and I’m incredibly jealous.

My landlord sent me my lease renewal today and I’m actually hesitant to sign it.  I’ll have to sign, because even if I move it won’t be before the renewal date, but I’m wondering if I’ll really be here another year.  I’d hate to leave my family and my friends, but I can’t stay here just for them.  And some of them have been moving away lately.  I need to go live my life whereever.  And it’s not like it’s necessarily permanent – I can always come back!  And of course I’ll be visiting as much as I can.

So now I’m trying to figure out where on earth I can live.  I have a lot of criteria (nice people, great healthcare, possible employment, etc.) but I have one that I have to filter everything else through: the weather.  Somehow I have to find a place with cooler summers for the autoimmune stuff and that also has a lot of sun, even in the winter, for the SAD.  Now that’s a challenge!  I was thinking about Portland, OR, but it’s too grey in the winter.  And there’s southern California, but I’ve already tried it and I wasn’t a fan.  DC/Baltimore is too hot and humid in the summer.  San Francisco is expensive and hilly (my poor knees couldn’t manage the hills.)  So I’m feeling at a bit of a loss.  I’m thinking about Denver or Boulder maybe.  Perhaps some other towns in CA.  But I really don’t know yet.  Those are places I haven’t visited yet, and I can’t consider anyplace seriously until I visit.  But suggestions are welcome!  (It has to be in the U.S. – I don’t have any way to get a work visa anyplace else.)

It’s exciting to thinking about starting something new.  And it’s exciting to imagine living in a place where I can go outside year-round without feeling completely lousy.  That would be amazing!  Who knows, maybe a year from now I’ll be writing from someplace completely different.  And until then, I’ll be dreaming and planning and exploring.  And that’s exciting in itself.

~~~~~~~~~~

If you can relate to this, please pass it along and share the camaraderie!  Thanks!


Baby steps: learning to stand, walk, and sit at age 32

March 26, 2012

It’s a natural progression: babies learn to roll over, then to crawl, then to stand, then to walk.  Easy, right?  Apparently not.

A couple years ago I was in physical therapy, having knotted muscles worked on, when my physical therapist decided I was ready for the next step: learning to stand.  Now, I’d been standing for years.  Sure, I never crawled, but I did go through all of those other stages, and I knew how to stand.  Yeah, it was painful to stand for more than a minute or so, but it’s not like I didn’t know how to do it.  Well, apparently I didn’t.

It turns out I’d been standing wrong my entire life!  I was putting my weight on the wrong part of my feet and that was throwing everything off!  This was quite a shock.  So I started working on how to stand and walk.  And it turns out I needed to work on sitting too – I was sitting on the wrong part of my ass.  This sounds like a joke to some people, but I swear it’s the truth.  Some of you may even be dealing with the same problem.

Eventually I “graduated” enough that I could work on the exercises at home.  I made some progress, but then the fatigue hit me last year and I stopped doing my exercises altogether.  So now I’m back in PT, trying to regain what I’ve lost.  And today, we worked once again on how to stand properly.  It’s infuriating to have to think about how I’m standing!  Then she had me walk around the room, and I had to think about how to do that too!

I’m perfectly happy to do this, of course, if it works.  I just really hope it works!  And in the meantime, I feel like a one-year-old all over again.

Head up, chin down, belly in, hips even, weight on heel, and…. go!

~~~~~~~~~~

If you can relate to this, please pass it along and share the camaraderie!  Thanks!


Springing past winter into summer

March 21, 2012

I don’t care what your views are on climate change, you have to admit that this has been a very odd winter in Boston.  In my entire life, I’ve never seen a winter like this, and people twice my age are saying the same thing.  We only had two snowfalls worth shoveling, and even those were measured in inches, not feet.  They even melted within a few days.

Wondering what a normal Boston winter is like?  I took this picture in January 2005.  Yeah, exactly.  And this winter?  This winter we hardly had any snow at all.  We saw clear pavement and grass almost the entire winter.  Other parts of Mass. got real snow, but not us.

Most people loved this.  To be honest, I enjoyed it too.  We still had some cold weather, but I don’t mind bundling up in my extra warm coat.  The great part was not having to worry about shoveling out my car or slipping on the ice – because there wasn’t any!  Woo hoo!  I loved not having to worry about my footing (at least, not any more than usual.)

And now I’m starting to pay the price.  When I was a kid in the 1980s, spring started in March.  I used to think I had imagined that, but then I came across an old home video dated March 1986 or so, and sure enough, we kids were outside playing in pants and t-shirts – and no coats.  But then in the ’90s we started getting snow through March and into April, and that became the new norm.  We hearty Bostonians grumpily adjusted to spring starting in April, or even in May.

Today, March 21, it was 80 degrees.  I knew there was a problem within a minute of getting out of bed.  It took me a minute to figure it out.  It was early, so the temp wasn’t too high yet.  And then I realized: the dew point.  I went online and, sure enough, the dew point was 58!  That’s  too high!  At 58 I’m generally already having flares of pain, fatigue, and GI issues.  At 60 I turn on the a/c and avoid leaving the house.  But the a/c isn’t in the window yet, it’s still in the basement, because it’s fucking March!  It’s still winter!

Needless to say, this wasn’t my best day.  It wasn’t the worst, though.  I quickly closed all of my windows this morning and pulled down the shades, and the apartment actually stayed fairly cool.  Too bad that won’t work through the summer.  And I used a/c in the car.  And I drank a lot of water.  Hello Spring.

Mother Nature threw us all for a loop and there’s nothing we can do about it.  I’m glad that in a couple more days the temps will drop 20 degrees.  Everyone else has been going on and on about how fabulous the weather was today, and they couldn’t understand why I didn’t agree.  I guess you’d have to be in a body like mine to understand that.  Personally, I’m looking forward to fall already, to those beautifully crisp autumn days.  Until then, I’m grateful for air conditioners and fans!

 

~~~~~~~~~~

If you can relate to this, please pass it along and share the camaraderie!  Thanks!