Ready to be done

April 4, 2012

Ok, I’m done with these illnesses.  I’m ready to move on.  I’ve had it.

It takes a lot to make me feel like I’ve reached my limit.  And then I continue some more.  I’m stubborn and I don’t give in easily, even when I should.  That’s why I stayed at a bad job longer than I should have.  It’s why I stayed in a bad apartment situation longer than I should have.  It’s why I tried to make things work in a romantic relationship longer than I should have.  Ditto for a family relationship.  And hell, I didn’t even give up on my crappy car when I should have (but at least I didn’t go too long on that one.)

The point is, I keep fighting.  I keep fighting, that is, until I just can’t take it anymore.  Then I quit the job, moved to a better apartment,
gave up on the ex, stopped talking to the relative, and sold the car.  Those all make sense, right?

But what can I do now?  I’m feeling very done with all of the health crap.  I’ve done this for 20 years and I’ve had it.  I’m ready to move on to the next phase, but there is no next phase to move on to!  Or at least, there isn’t one that I have any control over.

We all get frustrated, and I know that for me this will pass.  Last night was a bad night of pain, nausea, pepto, movies, inability to sleep, and more pepto.  After a day or two of feeling ok, I’ll be less frustrated.  Then I’ll have a flare or something, and the frustration will return.  I just wish there was something I could do about it.  I wish I could walk away from this health crap like I walked away from that job.  Wouldn’t that be nice?

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If you can relate to this, please pass it along and share the camaraderie!  Thanks!


Physical therapy: 8 out of 9!

April 1, 2012

There’s really nothing wrong with my physical therapy exercises.  They’re a bit inconvenient.  None are painful.  Some are boring.  Most involve effort I just don’t want to expend.  Still, even when I have nothing else pressing to do, for some reason I try to avoid PT.  I’m sure there’s some great psychological reason for this, but I’ll ignore it for now.  The point is, I suck at doing my exercises.

I stopped doing my exercises a few months ago when I was feeling especially fatigued.  I know this was legitimate, but it still meant that I suffered a backslide and I now have to make up for it.  I am attending PT again, and am supposed to do my exercises at home.  I decided that for me, the best motivation was to track it.  I might feel a little bad if I thought I’d missed a day or two recently, but I’d feel really guilty if I knew I’d missed 2 days out of the last 4.  So I went online and printed out a little calendar.  I bought some start stickers and I give myself a star every day that I do my exercises.  This is working great!  I felt much more guilt today than I normally would, since I knew I’d missed Friday, so I did the exercises at 9pm.  Normally I’d have decided it was too late to bother by that point, but I did them!

I should have started tracking a few weeks ago, but better late than never, right?  So in the last 9 days of tracking, I’ve done my exercises 8 times!  2 of those times were at the physical therapist’s office with her, but still, I did the exercises 8 out of 9 days!!

This may not seem huge to some people, but I’m guessing many others understand.  I’m going to do my best to keep it up, because I know these exercises really will help.  It’s time to aim for the stars!

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Considering a move

March 28, 2012

I’ve said it before and I’ll say it again: Boston’s weather sucks.

At least, it sucks for me.  In the winter my seasonal affective disorder (SAD) acts up.  In the summer, my autoimmune issues go wild.  Spring and fall are great, but they’re too short for my body.  And last summer pushed me to the edge.  I even looked for an apartment with central air conditioning.  I still wouldn’t have been able to go out much, but at least I would have felt better when I was indoors.  Unfortunately, anything close to the city was out of my price range.  I’ve known for years that one day I’d need to move out of Boston, to someplace that was healthier for me, but I’ve resisted.  My family and friends are here.  This is my home.

But recently some things have shifted.  I’ve been thinking more and more lately about moving.  There’s a lot in my life that I’m not thrilled with now, and I’d love a fresh start.  It’s not that anything is wrong really, it’s just that things are a bit stagnant.  I need to make changes, and I don’t think I can make them here.  And when I think about it, I’d love to try going someplace where the people are friendlier and the costs are cheaper.  And mostly I want to be someplace where I feel better.

So these thoughts have been going through my mind for a while, and then two big things happened last week.  First, we had two days of 80 degree weather.  That is not normal for March.  The temp was bad enough, but the dew point rose too – it was 56 and that’s close to my breaking point.  At 58 degrees I start having real problems.  So I felt really horrible.  And it’s only March.  Of course, this is New England, so yesterday it was 45 degrees and this morning there were flurries.  But this summer will be hot and humid, no doubt about it.

The other thing that happened last week is that a friend told me they were moving out of state.  My first reaction was to be sad they were leaving, but my second reaction was jealousy.  I was incredibly jealous that they were moving away.  Hmm, that’s not the usual reaction.  Maybe that’s telling me something.  Or trying to, anyway.

Last night I had dinner with them, and we talked a lot about it.  They’re moving back to the area he’s from.  They visit a lot and they have friends there, so they know the area and what they’re getting into, which is more than I’d have.  And they’re a couple, so they’ll have each other when they move, which is also more than I’d have.  But we talked about the desire to make changes, to start over, to reboot.  We talked about how exciting it will be to go someplace new (he’s lived here almost 30 years now, so it’ll be sort of new for him, and she’s never lived there.)  They showed me some rental listings they’re finding and the different neighborhoods they’re considering.  She’s on social security disability, so her money will go a lot farther there.  He works but doesn’t have a job in the new place yet.  Still, even if he takes a pay cut, they’ll be doing well.  So in less than two months, they’re going off on their new adventure and I’m incredibly jealous.

My landlord sent me my lease renewal today and I’m actually hesitant to sign it.  I’ll have to sign, because even if I move it won’t be before the renewal date, but I’m wondering if I’ll really be here another year.  I’d hate to leave my family and my friends, but I can’t stay here just for them.  And some of them have been moving away lately.  I need to go live my life whereever.  And it’s not like it’s necessarily permanent – I can always come back!  And of course I’ll be visiting as much as I can.

So now I’m trying to figure out where on earth I can live.  I have a lot of criteria (nice people, great healthcare, possible employment, etc.) but I have one that I have to filter everything else through: the weather.  Somehow I have to find a place with cooler summers for the autoimmune stuff and that also has a lot of sun, even in the winter, for the SAD.  Now that’s a challenge!  I was thinking about Portland, OR, but it’s too grey in the winter.  And there’s southern California, but I’ve already tried it and I wasn’t a fan.  DC/Baltimore is too hot and humid in the summer.  San Francisco is expensive and hilly (my poor knees couldn’t manage the hills.)  So I’m feeling at a bit of a loss.  I’m thinking about Denver or Boulder maybe.  Perhaps some other towns in CA.  But I really don’t know yet.  Those are places I haven’t visited yet, and I can’t consider anyplace seriously until I visit.  But suggestions are welcome!  (It has to be in the U.S. – I don’t have any way to get a work visa anyplace else.)

It’s exciting to thinking about starting something new.  And it’s exciting to imagine living in a place where I can go outside year-round without feeling completely lousy.  That would be amazing!  Who knows, maybe a year from now I’ll be writing from someplace completely different.  And until then, I’ll be dreaming and planning and exploring.  And that’s exciting in itself.

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If you can relate to this, please pass it along and share the camaraderie!  Thanks!


Baby steps: learning to stand, walk, and sit at age 32

March 26, 2012

It’s a natural progression: babies learn to roll over, then to crawl, then to stand, then to walk.  Easy, right?  Apparently not.

A couple years ago I was in physical therapy, having knotted muscles worked on, when my physical therapist decided I was ready for the next step: learning to stand.  Now, I’d been standing for years.  Sure, I never crawled, but I did go through all of those other stages, and I knew how to stand.  Yeah, it was painful to stand for more than a minute or so, but it’s not like I didn’t know how to do it.  Well, apparently I didn’t.

It turns out I’d been standing wrong my entire life!  I was putting my weight on the wrong part of my feet and that was throwing everything off!  This was quite a shock.  So I started working on how to stand and walk.  And it turns out I needed to work on sitting too – I was sitting on the wrong part of my ass.  This sounds like a joke to some people, but I swear it’s the truth.  Some of you may even be dealing with the same problem.

Eventually I “graduated” enough that I could work on the exercises at home.  I made some progress, but then the fatigue hit me last year and I stopped doing my exercises altogether.  So now I’m back in PT, trying to regain what I’ve lost.  And today, we worked once again on how to stand properly.  It’s infuriating to have to think about how I’m standing!  Then she had me walk around the room, and I had to think about how to do that too!

I’m perfectly happy to do this, of course, if it works.  I just really hope it works!  And in the meantime, I feel like a one-year-old all over again.

Head up, chin down, belly in, hips even, weight on heel, and…. go!

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If you can relate to this, please pass it along and share the camaraderie!  Thanks!