Wondering how to eat

June 25, 2012

As the next step in my last-ditch effort to improve my health, I am starting a new diet.  This diet is titled “The Anti-Inflammatory Diet” (if this link doesn’t work for you, see below) and should really be called the “Eat the Same Thing Every Day Diet.”  So here’s what I’m asking from you:

HELP!!!!!!!!!!!!!

Some people will look at this diet and think it’s easy, but there are a few things to consider:

  1. This was a huge accomplishment for me.  Until 3 years ago I could hardly cook.  Now I can cook a handful of meals decently and a few really well.  And none of them will be allowed on this diet.  Learning those took a long time and now I need to start over.
  2. I don’t like to cook.  I will do it because I have to, but I won’t spend hours at it.
  3. Some people have a natural ability to understand which foods can be substituted for others, and which flavors will go well together.  I don’t have that.  I have the opposite of that.  I have no clue.  I can’t make things up.  I need solid, explicit recipes.

So yeah, it’s a bit intimidating and overwhelming.  Oh, and one more thing is that I won’t use the oven for the next few months.  I react badly to heat and humidity, both of which Boston has plenty of in the summers.  I’ll use the stove, but I won’t stand over it for long periods of time.  Last summer I did 90% of my cooking in the crockpot and I’d love to do that again, so crockpot recipes are especially welcome.  But at the moment, I’d love anything that will add to the contents of my currently-pathetic refrigerator.

Having said all of that, PLEASE PLEASE PLEASE send me any recipes or useful web sites that could help me with this new challenge.  This is the first week and I’m already out of ideas!

I’m looking for three things:

  1. Main courses
  2. Snacks besides fruit and nuts, especially snacks that can survive a day in a purse
  3. Easy small meals for when I just don’t have the energy to cook, and I’ve already eaten whatever was in the freezer.  I used to do eggs (they’re on the bad list now) or oatmeal (that’ll be my breakfast every day now) with peanut butter (also on the bad list.)  I need something that would be that level of effort.  You know, for days like this.

I will be unbelievably grateful to anyone who can help me out.  And if cooking isn’t your thing either, any messages of support will also be gratefully accepted.  You can comment here or tweet me @CIRants or email me at msrants at gmail

This isn’t about complaining, it’s just about being overwhelmed.  I’ll do whatever it takes to make this work… as soon as I figure out how.

Thank you in advance for your ideas!

The Anti-Inflammatory Diet:

  • No gluten
  • No dairy products
  • No refined sugar products
  • No Corn, tomatoes, peppers, eggplant
  • No pork, cold cuts, bacon, hot dogs, canned meat, sausage, shellfish
  • No alcohol, caffeine-containing beferages, soy milk, soda or fruit drinks that are high in refined sugar
  • Foods high in fats and oils, including peanuts, refined oils, margarine, shortening, hydrogenated oils
  • Additional specific foods to avoid: oranges, corn, creamed vegetables, soybeans and other soy foods, peanuts, peanut butter, cashews, cashew butter, mayonnaise, spreads, canola oil, ketchup, mustard, pickle, relish, chutney, soy sauce, barbecue sauce, white or brown or refined sugars, honey, maple syrup, corn syrup, high fructose corn syrup, all artificial sweeteners, all candy

***Note: This diet was suggested to me by a licensed naturopath.  I am not suggesting or recommending it for anyone else.  To be honest, I’m not certain that it will even work for me, but I’m taking a shot at it.  If you think it makes sense for you also, please speak to a trained practitioner.***


But I want to work!

June 20, 2012

I was at a support group for people with chronic pain.  This group meets in the mid-morning on a weekday so, unsurprisingly, none of us are currently working.  As we went around the room talking about recent frustrations, I kept hearing a theme: I want to work.  One woman talked about the stress of having to declare bankruptcy.  Another spoke about getting turned down for Social Security.  I was having problems with a private long term disability insurance company.  Many spoke about money troubles.  A couple mentioned not being able to take care of their kids.  Several didn’t like having to rely on their spouse for financial support, as well as help around the house.

What do these all have in common?  We want to be well!

As I listened to everyone speak, I was thinking how much I’d love to have a transcript of that meeting to show all of the doubters.  There are too many random people in society who think that we’re just trying to get “easy” money.  There are the politicians and bureaucrats who seem to think we’re all trying to scam the system.  There are the insurers who insist that we’re not really too sick to work.  And yet over and over I heard people saying that they wish they could go back to work.  Some said it indirectly and others used those words, but we were all saying the same thing.

I hated my last job.  I won’t pretend otherwise.  But I still want to go back to work.  I want an income, I want independence, and I want control over my own life.  Right now, I would love nothing more than having the choice of returning to work.  Sadly, that is out of my control, just as it’s out of the control of the others in the support group.  If only the doubters understood just how much we want it.


Long term disability insurance: Navigating a system that is designed to screw us

June 15, 2012

I’ve written about the roller coaster effect before, and it’s happening again now.  This time it’s both physical and emotional, not to mention financial.

In addition to all of the irritating, difficult, painful physical problems, I’m also dealing with bureaucratic crap.  I wrote last week that the long term disability insurance company is denying my claim for benefits, but it turns out that it’s worse than I’d thought.  As it turns out, they aren’t suggesting that I’m not ill.  Instead, they are saying that I’ve been sick for a long time and they see no evidence that it’s gotten any worse.  Basically, if I was well enough to work a year ago, I should be able to work now, too.  But how do you prove worsening fatigue?  I don’t have a blood test or MRI for that.

Then it gets worse.  According to the lawyer I spoke to (who came highly recommended by friends who used her for their own SSDI claim) I will have an extra problem because I did not see a doctor in the few weeks leading up to my leave from work.  In fact, my last appointment before leaving my job was 2 months earlier.  At that appointment my doctor and I discussed the possibility that I might have to stop working, but I don’t know if that was recorded in my medical records.  I think it’s time to cough up the money and get a copy of my own records.  I wish someone would have told me that life would be easier if I saw my doctor in person before leaving my job, instead of just speaking with her on the phone 4 separate times.  I’d have gladly done it, if I’d only known.

The lawyer talked about the many steps we would take to appeal the LTD denial, including getting letters from my doctors and from friends and family, as well as hiring a vocational expert to study my case and write a report explaining why I can’t work.  This all sounds wonderfully proactive, but there’s one part that makes me very nervous: the lawyer isn’t confident enough in my case to take it on a contingency basis.  Damn!

So basically the system is designed to screw us.  I got insurance and paid my premiums, and the company denied my claim to save themselves money.  In order to get them to pay what they rightfully owe me, I have to spend a lot of time and energy and effort and money (none of which I have any extra of) to hire a lawyer.  If I ever get well (or well enough, at least) I am going to fight this system.  I don’t know how I’ll do it, but I will get it publicized, I’ll get my legislators involved, I’ll do whatever it takes, but this simply can not be allowed to continue!  But first I need to get my own claim approved and focus on my health.

And in case you’re wondering, the appeal will take approximately 6 months and cost me $7000-$10,000, plus expenses.  Expenses are for things like paying for copies of medical records, paying for the vocational expert, etc.  If we lose, I’m out that money.  If we win, the insurance company owes me $30,000 per year and they will pay me what they owe me from the date I became eligible a few months ago.  They will not pay the legal expenses I incur.

Yep, the system sucks.

Oh, and of course this is also at the same time that I am looking into practitioners, tests, and treatments that will not be covered by my health insurance, I feel like crap daily, I am enduring the most stress of my entire life, and my scant energy should be used to research my treatment options and to recover.  Like I said, this system is designed to screw us.


A homebody, but not always by choice

June 12, 2012

It’s 9pm on Tuesday night and I am sitting in my apartment typing this.  The last time I went outside was on Sunday afternoon.  I wish I could say this never happens, that I never get confined to my apartment, but sadly, it happens far too often.

So many people comment on how good I look, or on how cheerful I am, or on how well I seem to handle all of my health problems.  What they don’t understand, even when I try to explain it, is that the reason I always appear so well to them is that they simply don’t see me when I’m not doing well.  Simple.

They also don’t understand that I’m not hiding from them.  It is very rare that I stay home so that someone won’t see me looking or acting ill.  It’s actually the opposite – they don’t see me looking or acting ill because when I feel that bad, I don’t have the energy to leave the house anyway.

So that’s where I am right now.  I felt so lousy yesterday that I skipped my errands.  I still felt horrible today, so I canceled my plans.  When I do eventually see people I’ll appear to be doing better, because if I don’t feel up to leaving the house, then I’ll just stay home.  I’m sick of my pjs and I’m tired of sitting on the couch, but right now, it’s really all I can manage, so I’ll just have to go along with it.

Oh, and in case you’ve been following and you’re wondering, yes, this is my body’s payback for the other night.  And it’s completely worth it.