Yes you can: asking for help

December 2, 2011

A friend of mine had surgery this week.  This was planned in advance, so he knew when it was happening.  The recovery period is one month out of work, and then a few more months with certain activity restrictions.  He knew this would be tough, so a few weeks ago, he sent out an email to all of his friends in the area to ask for help.  What does he want?

He asked people to visit with him, by phone or Skype or in person.  He asked people to cook some meals.  He asked people to help him with some errands.  Simple, right?  We’re all very happy to help.  He set up a calendar on a web site that organizes everything, so at any time I can go on there and see which days he needs someone to come by.  I can’t do his laundry or lift things, but I can visit and provide company.  Other people can’t visit in person, but they’ll Skype to keep him company.  We’re all going to do what we can.

And this made me wonder, why do so many of us have trouble asking for help?

Now, the obvious reason is that chronic illnesses are ongoing, so we’d be asking for help a lot.  There’s no simple “recovery” period.  And after all, it’s not like we know when we’re going to have a flare, so we can’t predict when we’ll need help.

But aren’t those just excuses?  Yes, we need to be careful not to be burdensome, but if I were to ask a bunch of friends to collectively do 2 things for me each week, it would be months between asking favors of the same friend.  I’m sure they’d be thrilled to help.  Many have offered.  And let’s face it, even though something might feel huge to me, it’s probably minimal for them.

I’ve always been bad at asking for help.  When the pain in my wrists was so bad that I couldn’t cut my food, I’d just put a big piece of meat on my fork and bite of bits at a time.  I bristled when my mother offered to cut my meat (I was young and still living with my parents.)  I turn down offers of help from family and friends.  I guess I’m just too stubborn for my own good, but I’m working on that.  We all need to work on that.  Dealing with chronic illnesses is hard.  Why make it harder by trying to do everything alone?  Asking for help might make it a bit less difficult.  It’s worth a shot, right?

 

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My personal cure-all

November 26, 2011

We all know there’s no such thing as a cure-all.  If there were, we’d all know about it and be getting it.  Still, I’d like to think that everyone has something that will make them feel at least a little bit better.  It might be a certain movie, a piece of artwork, or a friend.  For me, it’s dogs.

I’m not suggesting that dogs cure me.  That would be ridiculous.  But if I feel good, dogs make me happier.  If I feel bad, they make me feel a little less bad.  This has been a tough week, but spending the evening with a sweet dog who I love, plus a new puppy, made me feel so much better.  No, I’m not completely well, but I’m better than I was before seeing the dogs, and I’m certain that I’m better than I would have been if they weren’t there.

There’s one dog in particular who is amazing.  He’s very intuitive.  When someone is ill, he comforts them.  My parents are very lucky to have him.  When I have been at their house while ill, he will stay by my side.  He’s often a lap dog, but eventually he wants to play.  When I feel sick, though, he just curls up by my side, his little furry body radiating warmth and love, and I start to feel better.  He just stays there until I start to improve.  There are studies that say petting a dog or a cat can lower a person’s blood pressure.  I don’t need to read a study.  I feel it every time he jumps into my lap.

So yes, I am the absurd 30-something who will stop strangers on the street and ask to pet their dog.  But why not?  It makes me feel better, it makes me happy, the dogs love the attention, and the owners love hearing strangers say how sweet their dog is.  Everyone wins.  We all need something that makes us feel better, and for me it comes in a furry form.  I can’t have a dog of my own (I’m not well enough to care for it) but I’ll spend time with others’ dogs whenever I can.  They are amazing animals.

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Self care is *not* a vacation

November 24, 2011

Family gatherings.  They’re different things to different people.  With just one exception, I really enjoy spending time with my family, and today was no different.

For the first time in days, I got out of the house and had contact with people, which was nice.  I feel very lucky that family gatherings are generally fun and are usually not stressful.  I know that’s rare, or at least more rare than we’d all like.  Still, it wasn’t easy.  I put on a smile and acted like everything was fine around most people.  When a close relative asked how I’m enjoying my “break from work,” though, I had to say something.  I explained that this wasn’t a vacation, that I’m really not feeling well and I’m trying to use it to get better.  I said that the last time I left the house was on Tuesday, and that was only to get groceries for my Thanksgiving cooking.  Before that, I hadn’t been out since Sunday.  I pointed out that if I’d tried to go to work this week, I probably would not have felt up to attending the Thanksgiving meal.  So this “break” is allowing me to take care of myself.

I said it nicely, just to educate him.  Thankfully, he got it right away.  It’s frustrating to have to educate people over and over, but in this case it’s worth it; it means that next time he’ll understand and he’ll ask how I’m doing instead of if I’m enjoying the “break.”  Either way, I know he’s always going to be supportive, and I appreciate that.

I’m not going to do a big Thanksgiving article, but I will say that I am very thankful for my amazingly supportive family and extended family.  As we all know, many of us couldn’t get through this without the help and support of our loved ones, and I feel very fortunate to have a great group of relatives around me.

Life can be shitty, no doubt.  So when I’m having tough weeks like this one, I try hard to remember the things I’m grateful for.  After all, it’s not all bad.  The important thing is to remember that.

 

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Truly *understanding* chronic illness

November 19, 2011

“Why are you taking a leave of absence from work?”

[stunned silence]

“The usual stuff, but it’s gotten worse.”

[confused silence]

___________________________________________

I am shocked at how many times I have had this conversation.  To be honest, even one time would be shocking, but I keep having it over and over again.  A few weeks ago I wrote this post about wearing masks so that people won’t see what I’m going through.  It’s something we all do, and we each do it in our own way.  For me, it means letting people know there’s a problem, but not letting them see how bad it really is.  That seems to be backfiring (as these things always do, even though I pretend they won’t.)

A few close family members and friends understand.  I let them see how bad it was, or they saw through my facades.  A few others understand because they’ve gone through similar things.  But most people just don’t get it.  They know I have some “issues” but figure they’re under control.  I seemed ok, except for occasionally having to cancel plans or not being able to drive too far in a day, and those are minor, right?  So why should I need to take time off from work?  I hate to spoil the illusion, but it’s time.

I keep seeing statistics about how many people live with chronic pain, how many have arthritis, how many have autoimmune diseases. These number make for catchy headlines and memorable soundbites, but where’s the education?  Maybe the problem is that we’re all wearing masks.  We need to make our family and friends understand our illnesses, so that they can make their people understand it, so that maybe society will start to get it.  The ignorance is so frustrating.  Yes, I wear masks, but even when I do show people what’s going on, a few weeks later I seem ok, and they forget all about it.  I need them, we all need them, to understand.

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