Yes, I’m one of them

December 9, 2015

I was talking to some friends about some tough decisions I need to make about benefits. One of them said, more than once, that I might need them for a while, but those benefits aren’t meant for my “demographic.” They’re not for people like me. But the thing is, they really are.

I understand why she said it. We both grew up in middle class families in the same middle class neighborhood. We both went to college, then graduate school. We both got middle class jobs. We followed all the “rules” and now we’re supposed to have our happy middle class lifestyles. She is a stay at home mom. Her husband earns a very large salary. She has that middle class lifestyle.

I don’t.

There’s an idea that benefits are meant for other people. The people who aren’t middle class. The people who don’t have jobs. Well, as it turns out, that’s me.

Those benefits are for people with physical and mental illness. People who can’t work. Yup, me again.

People think they’re for people who are older. But they aren’t. They’re for people of all ages. Including people in their 30s like me.

My friend means well. She tries to understand. She is one of the only people in my life who knew me before I was sick, and she understands my health problems better than most. But she can’t accept that it’s permanent because she doesn’t want to. It hurts her to think of me in pain. I get that. I feel the same when someone close to me is in pain; I pretend it can’t be serious or permanent, even when it obviously is. That’s how she feels about me.

But it doesn’t change things.

So yes, I’m one of those people. The other ones. The ones who aren’t us. Except sometimes they are. Sometimes they’re one of us. Sometimes we’re one of them. It doesn’t matter if you grew up rich or poor or somewhere in between, whether you got advanced degrees or didn’t finish high school, you can be too sick to work. And when that happens, benefits like food stamps, Medicaid, and section 8 are helpful. Even when we don’t want them, we need them.

Like it or not, we’re one of them.


Answering “What’s new with you?”

November 29, 2015

What’s new? It’s a simple, standard question. We all ask it and have it asked of us dozens or hundreds of times each year. Sometimes it’s like saying “Hello” and the asker doesn’t expect an answer. But sometimes they do. And sometimes, the answer is complicated.

I’m not talking about health stuff here. Well I am, but not directly.

When someone asks “What’s new?” sometimes what’s new is bodily issues. That’s probably true of anyone with a chronic illness. But sometimes it’s health-related stuff. When someone asks “What’s new?” should I tell them about my uncertainty about Section 8, fights with health insurers, problems with doctors, and about how I’m running out of room to store medical supplies at home? Should I explain my concerns around earned income and Social Security or the way that Medicare and Medicaid work together to cover costs but sometimes they fail, even when it means having to give a 20 minute explanation of the entire system just so it makes sense?

It’s like back in the days when I used to work. If someone asked me how work was going, I’d say it was good or bad, or maybe tell a funny story, but I wouldn’t talk about the boring issues with vendors or the technical aspects. I wouldn’t use terminology that I first had to define.

And that’s how it is with a chronic illness. Even when I’m not talking about my actual health, it’s hard to answer the question because so much of what’s happening in my life is health-related in one way or another.

So now I’m asking you: How do you answer the question, “What’s new with you?” Please let me know in the comments!


Adjusting to my new-found support

November 13, 2015

We all know how it goes. You get sick and everyone steps up to help you. Then you stay sick, and people get busy with their own lives. It happens. I’m as guilty of it as anyone. And that’s why it feels so odd when the support is offered again.

Part of the problem, of course, is that I suck at asking for help. I should do it more. And part of the problem is that I would 2015-10-17 11.45.26be asking for help so often, my friends would get burned out. I get that. I can’t expect anyone to be visiting me every other week or helping with laundry regularly. But at the same time, I know that people forget, and that’s tough.

So when I had surgery a couple weeks ago, it was wonderful that so many friends stepped in to help and offer support. Suddenly there was an outpouring of good wishes, emails, and phone calls. I’ve gotten visits and thoughtful gifts (like a gift card for grocery delivery!) After so many years of poor health, this all feels a bit strange, but it’s far from the strangest part.

The strangest part is every time someone looks at my foot and comments on the cast. I don’t know how to respond when someone asks if I’m in pain or if I’m having a tough time. I won’t lie to you – this isn’t easy. But it’s not that bad, either. I’m stuck at home, but the truth is that I’m often stuck at home, this is just for a bit longer. It hurts, but very little compared to my normal daily pain, and a hell of a lot less than the original injury. I’m limited, but not so much worse than usual. I’m frustrated, but that’s nothing new. It stops me from doing things what want to do, but that’s like all other days. Yet people ask about it as if it’s so different.

The truth is, I feel better this week than I have in ages, thanks to the change in seasons and my forced increase in rest time.

In another month I’ll be back to “normal” and the extra emails, calls, and visits will have ended. For now, I’ll just enjoy it while it lasts.


Finding ways to handle stress

October 26, 2015

We all have our coping methods. Some are healthy, some less so. When I found out I needed to have surgery, I threw IMG_20150724_195633together a gluten-free chocolate cake mix, baked it, added on the frosting, and proceeded to eat just over half the cake in 4 days. Suffice it to say, that was one of my less healthy ways of dealing with stress.

I’m stressed out. My distrust of and anxiety around doctors and anything medical has been growing exponentially lately. It was a problem even before this surgery, but now it’s worse. It doesn’t help that the doctors didn’t handle this whole incident correctly to begin with. On top of that, my thyroid levels are off, not something you want as you head into surgery. And if that weren’t enough, my sleep doctor just emailed me about my most recent sleep study. I was so hopefully that maybe, finally, I’d get some consistently good sleep. At least! I was so excited! His exact words were, “Your breathing was a rhythmic mess. We have our work cut out….” No reassuring.2015-08-20 22.19.09

Sometimes I wish I drank. This is one of those times.

But I don’t. So I need to find another way. What always makes me happy? That’s easy: dogs! If you’ve been following this blog for a while, you’ve heard me mention my parents’ awesome Sheltie from time. Looks at these photos…. isn’t he adorable? And other dogs make me incredibly happy, too. I stopped by a local pet supply store the other day just to maybe see some dogs. The store doesn’t have dogs, but customers often bring theirs with them. I didn’t see any, and as I headed out of the store in defeat I saw him: a puppy! Petting that puppy cheered me up immensely.

So I did the only logical thing: I posted on Facebook and asked my friends to share cute dog photos and videos with me!

The outpouring has been fantastic. A lot of friends want to help me but they can’t because they’re too far away or because they have their own health problems, but this is something they can do. A few even posted photos to their own walls and tagged me, asking their friends to share their own photos, so their friends did, too! Every day there are more cute photos and videos. Some are my friends’ dogs, and some are random internet findings. I don’t care, they’re all wonderful!

And that’s why today, when I was messaging with a friend on Facebook about my current medical issues and feeling stressed out and overwhelmed and on the verge of tears, I suddenly found myself laughing at a video of a Shiba Inu digging in the sand that a friend had posted to my wall.

So now I’m asking you to do the same. Please share a link in the comments, tweet me at @CIRants or email msrants at gmail.com. I’ll gather up those photos and create a post of them to share with all of you!

So that’s how I’m handling stress this week. What about you? How do you handle impending stress?