A little consideration

August 2, 2011

It happens every day.  A slightly older woman got onto the T (the subway) and was clearly not completely steady on her feet.  She looked around for an empty seat.  She came over to one which was wet (I prefer not to consider the possible reasons for that.)  I wanted to help, but I was standing too.  Most people were either too wrapped up in their own books, phones, games, lives to notice, or else they pretended not to notice.  Like I said, it happens every day.  And then a woman looked right over, signaled to this lady, and offered her seat.  The lady declined, said she’d be fine.  The woman simply said “If you change your mind, let me know.”  She was kind, respectful, thoughtful.  The lady was clearly appreciative.  I was a bystander, but it warmed my heart all the same.

The next time you’re on a train or bus, look up.  If you see someone who needs a seat and you’re capable of standing, remember how lucky you are to have the option to stand, and offer your seat.  You’ll feel better and so will they.


Whether weather matters

August 1, 2011

Weather is a real pain in the you-know-what.  We can’t control it, we can barely predict it, and it can have a huge impact on our quality of life.  So many chronic conditions are affected by the weather.  People have said, “Why don’t you just move?”  Yeah, that’s easy for you to say.  Have you ever moved to a new city without knowing anyone there?  I’ve done it.  It’s hard.  It’s really really hard.  And the weather was great, but I didn’t like the city, so I was pretty unhappy there.  Where would I be happy?  And where would I even feel better?  I can’t be in a place that’s too hot and humid, or a place that’s too snowy and dark.  And since I’d need a job, and I’m not a citizen of any other countries, it would probably need to be in the U.S.  That’s pretty limiting.

I don’t want to move.  My family is here.  My friends are here.  I would hate to leave the people I care about.  But I know I’ll move some day.  Every summer is worse than the one before.  Every year I question how much longer I can stay.  My seasons in Boston are limited.  I love this town, and I’ll be sad to say goodbye.  Until then, I’ll enjoy it as much as I can.  And stay indoors with the a/c.


Stories of "inspiration"

July 30, 2011

Does anyone ever forward you an email about someone “inspiring”?  Do they tell you a story?  Maybe clip out a magazine article?  You know what I mean.  These are the stories of someone with one leg who runs a marathon, someone terminally ill who climbs a mountain, that kind of thing.  I’ve gotten dozens of these personally, and this week I even saw someone post one of these on her Facebook wall.

I always wonder what people expect me to get from this.  I suppose they want me to remember that I can do anything I want to do.  Honestly, I think that’s bullshit.  I can do anything within reason, sure.  But absolutely anything?  No.  It’s stupid for me to think I could, and I could seriously hurt myself if I try.  Can I run a marathon?  Not a chance.  My knees hurt like hell when I try to run to catch a bus.  On a good day I can jog a block or two before they turn to jelly.  My doctor has told me not to run.  So has my physical therapist.  A marathon is just a bad idea.  As for climbing a mountain, let’s see…. there’s the fatigue to overcome.  Then there’s the knee issue – climbing one flight of stairs is tough, 4 is nearly impossible, so a mountain seems unlikely.  And then there are the breathing difficulties.  Climbing a mountain seems about as likely for me as running a marathon.

So what these story-providers are saying is that if these other people who I don’t know and will never meet and who have “worse” conditions than I have can do these amazing things, then I should be able to do whatever I want to do.  There are some parallels missing here.

Yes, their logic is off.  But then, there’s the hidden message, the message that they expect me to be able to do anything I want.  Society expects it.  We look up to people who have seemingly-impossible-to-conquer limitations, who then conquer their limitations.  We learn that this is how we should all live.  It gives the impression that those of us who don’t achieve these amazing accomplishments have somehow failed.

This is a huge burden, and it’s entirely unfair.  I will never run a marathon or climb a mountain.  You know what my great achievement is?  I work at a job, I maintain friendships, and I live independently.  No one is applauding these accomplishments (except for my mother, who is the greatest supporter I could ever want.)  I doubt anyone will want to publish my story.  Society doesn’t think this is so fantastic.  It takes all of my effort every day to do what others take for granted, and for that, I am told, at least in an implied way, that I’m not doing enough.

Well you know what?  Working, having relationships, and being independent is my goddamn mountain.  Deal with it!


Where’s the Friday fun?

July 29, 2011

Every Friday, it’s the same thing at the office: “Do you have anything fun planned for this weekend?”  I really can’t say, “Yes, I’m recovering from the physical exhaustion of being here.”  Somehow, I don’t think that’s the answer they want.

It’s Friday night, and movies, books, tv (especially Sex In the City reruns), magazines, and friends, all give the impression that a single 30-something in the city should be out having fun.  Now, let’s forget our personal preferences.  Some of us love bars, others prefer museums, still others would rather stay home.  The point is, it would be nice to have a choice, right?  Instead, most Fridays nights see me at home not because I want to be home, but because it’s necessary.  Working full time is exhausting.  By Friday, I’m just relieved to get through the day, get home, and collapse.  If I can spend the evening reading, as I did tonight, instead of mindlessly zoned out in front of the tv, I figure the evening is a success.

But go on a date?  Not likely.  Meet up with friends?  Very rare, and only with friends who understand if I need to crap out early.  Out to the movies?  A bar?  A party?  I’m too worn out for that.  But wait, I’m still young!  I wonder how things will be in 10 years.  Or maybe the new meds will work and I’ll be acting my age by the end of the year.  Ok, I know that’s unlikely, but I just want a shot at pretending to be “normal.”

So for all of those who are stuck at home, like it or not, on this Friday evening, I want to remind you that you are not alone.  We are not all Carrie Bradshaw, heading out in supposedly-stylish clothes (am I the only one who thinks most of her outfits were ugly?) to check out the hottest restaurants and clubs.  We’re not all heading down to the local bar for drinks and music with friends.  Some of us are honoring our limitations by simply giving in to them.  And that’s ok.  We do what we have to do to get by, right?  And hopefully a Friday night at home will lead to a Saturday afternoon out.  If not, that’s ok too.  Just find something to do that will make you happy, wherever you are.  At least, that’s my plan.