A reading workaround

December 10, 2011

When I was 7 years old, my parents bribed me to read.

I had been asking them to buy me Uno (yes, the card game) and they said that if I read regularly for a month, they’d get it for me.  My mother made a chart and hung it on my bedroom door.  Every day that I did my reading, I got a star sticker.  I could read anything I wanted.  I think I read a lot of Ramona Quimby and Sweet Valley Twins that month.  Remember, I was 7 and this was the 1980s and…. well ok, I admit that now I read the adult equivalent of SVT.  It was fun reading!

At the end of the month I had enough stickers that my parents bought me Uno.  I also had a new-found love of reading.  Uno and reading – it was a good month!  Reading used to be a chore, and now I hated to put a book down.  I’d read after school.  I’d read at restaurants.  I’d read while I walked through parking lots (that one was discouraged.)  I’d read with a flashlight under the covers, long after I was supposed to be asleep.  Suddenly reading was great.

I read through the rest of elementary school and by 6th grade, I’d run out of books to try in the school library.  I made a good dent in the junior high school library’s selection after that.  I read through high school and college, and somehow I even found time to read in grad school (though mostly just on the long bus rides every day.)  I always have a book to read.  I have dozens of books at home, waiting to be read.  I go to the public library constantly.  No, I don’t read all day every day, but I do read at some point every day.  It’s rare that I go for a day without picking up a book.

At least, it was rare.  It was rare until a few weeks ago when the fatigue got especially bad.  Now, I’ve been falling asleep when I read.  I can’t get through more than a few pages at a time.  At night, I fall asleep before I even open the book.  I’ve spent 2 weeks on a book, a good book, and only got through 50 pages.

And then it all changed.  I got through another 50 pages of that book just this afternoon.  How did I do it?  I got the audio book!  I prefer to read, since I’m a visual learner, and I feel like I get deeper into the subject matter when it’s on a page in front of me, but an audio book is better than no book!  For a lot of people, audio books are much easier.  For years, I have had to simply not read large hardcover books.  Thanks to my joint point, I find them too heavy.  I did get a Kindle, but a lot of those books are expensive, and I can’t afford to buy all of them.  What to do?  Viola!  The library has audio books!  I just ordered two more audio books today!  [A shoutout to the Minuteman Library Network.  I go on their web site, pick the book, cd, dvd, etc. that I want, and it gets delivered to any branch I choose, all for free.  If only all other municipal services worked like this!  Plus, their staff is always helpful and pleasant.  I can’t say enough good things about our libraries.]

While I’ll miss reading, I have to admit, it’s nice to zip through a book.  I’m a very slow reader.  I may read every day, and spend hours at it, but it will still take me a long time to get through a single book.  Today, I listened to a big chunk of the book while I took a walk (and I walked longer because of it!), played solitaire on the computer, knitted another section of a scarf, made dinner, ate dinner, washed the dishes, and sorted through some junk on a shelf.  Sometimes I read while I eat dinner, but I couldn’t have read a book while I did any of those other things.

So this is my Ode to the Audiobook.  Having CIs sucks, and there are a lot of things I can’t do now, but every now and then I find a workaround, and it just makes things so much better.

 

** By the way, I’m not suggesting that anyone else bribe their child to read.  The same technique didn’t work on my sister.  I’m just glad it worked on me.

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Obeying fatigue

December 9, 2011

I should be checking my cleavage in the mirror right now.  I should be putting on some lipstick.  A party is just getting started at this very moment in a house in Boston.  I don’t know most of the people there, but I know there will be a lot of cute single queer women.  But I won’t be one of them.  Nope, not me.

I don’t know what’s been going on these past few weeks.  I’ve been fatigued  in a way I’ve never been before.  I had blood drawn today so my doctor can check for anemia and whatnot.  And in the meantime, I’m staying home, canceling plans, missing out.  I even had to miss a support group meeting today!  Oh, the irony.

It sucks.  Keeping up with friends is hard when you have health problems.  Dating is hard when you have health problems.  But meeting someone to date when I can hardly leave the house?  Impossible.

So this is my grumpy post for today.  I’m pissed off, but not as much as I should be, because I don’t have the energy for that much emotion.  Instead, I’ll go watch a movie, eat some popcorn, and pretend this is my choice.  Yeah, right.

 

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A “Holy sh*t!” moment

December 8, 2011

I’ve thought through all the possibilities, considered every angle, but that one question felt like someone slapped me upside the head.  Actually, no, it felt more like I’d been hit with a steamroller.  How had I never thought of that before?

Last year I applied for FMLA at work.  I was told that I got 12 weeks of FMLA total for the year.  I shrugged it off, saying that I wouldn’t need 12 weeks.

A few months ago I applied for short term disability insurance (STD.)  I was told how long term disability insurance (LTD) works, just as part of the application process.  I shrugged it off, saying I wouldn’t need LTD.  I wouldn’t need all of the STD.

Now I’m on STD and it will be lasting more than 12 weeks.  And suddenly LTD doesn’t seem so unrealistic.  Maybe I will need it after all?  But no, that can’t be.  If need be, I’ll just get a part time job.

Last night I told a friend that I had applied for a part time job.  I wasn’t looking for work, but a friend told me about a perfect opening at his organization, a place I’ve wanted to work at for years now.  It would be stupid not to apply, so I did.  When I mentioned this, she seemed surprised, and asked if it made more sense for me to get LTD instead (the requirement to apply is that I can’t do the work of my current position, which is certainly true now; to extend it beyond the initial period I would need to say that I couldn’t do any work at all, but that’s not a bridge I need to cross any time soon.)  I started to explain that LTD only pays a certain percentage of my salary, and as I was explaining this, I realized that I wouldn’t earn more at a part time job, and I’d probably earn less.  And the benefits wouldn’t be as good.  And I’d have to commute, and deal with the physical and mental demand of having a job.

BAM!

That’s when it hit me: I might need to sign up for LTD and be on it for a while!  Now, I have some time to figure this out.  I can be on STD for a bit longer, so I will wait until the time gets closer to make a decision.  Tomorrow I’m going to have blood drawn, and maybe my fatigue is just from something simple, like anemia.  I’ve never wanted anemia so badly in my life.  I will hope there’s a fix for this.  But in the meantime, I’ll be reconsidering all of the options I’d already considered.  It’s time to look at this from a new angle.

And maybe buy a lottery ticket.

 

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STD and SSDI: Who designs these things?

December 7, 2011

I visited a friend yesterday who was recovering from surgery.  He had built up a lot of sick time at work over the years, since he is generally healthy, so he will use sick days to cover his month out of work.  He has an understanding boss, who knows that he may need to take off extra time.  His health insurance covered the majority of the costs of the surgery.

He asked me how I’m doing, and how I’m managing to be out of work.  He meant financially.  My friend is smart and well-educated, but he got a new kind of education from me yesterday.

First, we discussed how my short term disability (STD) works.  I’m lucky to have an especially good plan.  We talked about how poorly my boss handled my exit, which makes me wonder if my reentry will be difficult.  We talked about how I want to return to work part time because I’m worried that returning full time will lead to a quick relapse.  Unfortunately, it is up to my boss whether or not I can return part time.  If she allows it, then I will return to work a few days a week, and STD will cover part of my salary for the days I don’t work.  Of course, at some point STD will run out, at which point I’ll just earn a whole lot less.  I should be able to cover all of my bills, but I won’t be able to put any money into savings.  Of course, I need to put money into savings more than ever, as I’ve realized that my body will force “retirement” on me much earlier than I’ll be able to afford.

Then we talked about social security (SSDI.)  We discussed how I may not even be eligible for it.  If I am eligible, then the application process is long and arduous.  Most people are denied and then need to appeal.  If I were to get approved, it could take two years.  For those two years I wouldn’t be working, so I’d be draining my savings account.  The amount I would get would be just a bit less than what my rent is now.  It wouldn’t be enough for electricity, gas, or groceries.

Now, let’s say I did get SSDI.  I have a fluctuating illness.  I have weeks and months and years where I feel better, then I feel worse.  When I feel better I could work.  But I’d lose SSDI and if I needed it again, I’d have to start applying all over again.  That’s why many people are on SSDI even though they are well enough to work.  They know that getting off SSDI now would be devastating if they ever needed it again.  So they stay on it even though they are well enough to work.

My friend just shook his head in sadness, thinking of the many, many people caught up in this horrible system.  And I’m one of the lucky ones: I have STD, I have family to fall back on, I have good health insurance, and I have a little money in my savings account.  I could be so much worse off.  But I am wondering how to pay for the acupuncture treatments that I just started today.  My health insurance doesn’t cover those.

When when I consider all of this, the insurances and the government “help” and all the rest, I just have one question:

WHO ACTUALLY THINKS THIS IS A GOOD SYSTEM?

I don’t know who it is, but I’d be willing to bet that they don’t need to use the system themselves.  If they did, they’d be working to change it.

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