I found this great web site the other day, How to Understand Someone With Chronic Pain. This is one of the more accurate and insightful sites I’ve seen. The problem is, it only works if people read it.
I emailed this site to some specific people, I posted it on Twitter and on Facebook. I’ve told people about it. But I can’t force anyone to read it. I’ve seen other good sites and videos, but again, they only work if people read the pages and watch the videos.
For the people important to me, I think that if I email them the site and tell them that it’s important to me, they’ll read it. But then, these people already have a better understanding than most, since they’ve watched me deal with this for 20 years (or as long as they’ve known me.) How can I get their friends and acquaintances to read it?
Really it all comes back to the same old issue: ignorance in the general population. I’m tired of people suggesting that I’ll feel better if I get more exercise, or that I just need a good night’s sleep, or that I can’t really be doing that badly if I’m acting or looking so good. I know that at some point I have to ignore people and just not care, but that can be very difficult to do. I’ve learned to ignore strangers, but what about friends of friends? What about coworkers? It gets complicated. We all have our thresholds, and lately I’ve been hitting mine. A lot.
There’s no real point here, only that I hope everyone who reads this will email/post this site, or a similar one, to the people they know so that we can spread the education. There are millions of people with chronic illnesses; we can’t pretend otherwise. Let’s spread the word!
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