Appreciating what we don’t know we have

October 7, 2011

Four hours and 10 minutes ago, I walked out of my office, not to return for three months.  It was very odd.  It was sort of like quitting a job, but not at all the same.

As I left I saw a coworker who was still working, promising she’d leave soon.  She works a lot of hours, and seeing her working made me sad.  I understand why she does it; I used to work a lot for the same reasons.  There’s the sense of responsibility, the pride in work well done, and other such feelings.  She is not forced to stay late, but she feels an obligation to get the work done.  I understand that.  Like I said, I used to do the same thing, but that was before.

For years I worked too many hours.  I’m not talking about 80 hour weeks (well, maybe once or twice), but I was working too much and enjoying life too little.  One of the good parts of illness is that it’s forced me to slow down and appreciate life.  Then again, I now feel too lousy to enjoy it as much as I could have several years ago when I felt better.

It’s frustrating that we don’t know what it is we could lose.  Even now, very aware of what I’ve lost, I can’t appreciate what I have.  I try, I really do, but I know that I won’t really understand what I have until it’s gone.  There’s a lot that I’ve lost temporarily, and I’m always grateful to get it back.  That’s a start.  But then there’s the rest.

As I walked out the door, I tried not to sound preachy when I suggested that my coworker enjoy life while she can.  She gave me that pitying look that we all know too well.  She thought I was just projecting my situation on to her.  Maybe I was.  But that doesn’t make it less true; she’s healthy now and should take advantage of it, because no one ever knows when that will change.  I wish I could have made her see that.

 

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Pain: It’s all relative

October 4, 2011

It’s that time of year.  Some people are gearing up for Halloween, others are lining up for flu shots (and I suppose some might be doing both.)  I got my flu shot today for the fourth year in a row.  It’s funny to me how people get nervous about it.  If you’ve never had one, or if you get bad reactions, then I get it.  What amuses me are the folks who worry about the pain of the flu shot.

Then again, I guess I’m not really amused.  I’m actually jealous.  It would be nice to think of a flu shot as terrible pain.  I suppose that if you rarely experience pain, if you measure pain by a stubbed toe or hitting your funny bone (I did that this morning; it’s really not so funny) then sure, a flu shot seems bad.  I’m jealous, because I have so much pain so frequently that a flu shot feels like nothing.  Ok, it’s not nothing; I felt it and it hurt a bit.  My arm is sore.  Do I care?  Not really.  I know it will make it a bit harder to sleep for a couple of nights.  I can sleep through other pain because I’m used to it, but pain in a new location will throw me off for a bit.  And then it’s gone.  That’s the thing, we all know that it’s temporary.  I would so love to know that my pain and other symptoms were temporary.

So come on people, I know you can do it.  If you don’t want to get the flu shot because you don’t believe in vaccines or something, that’s your choice.  But please don’t avoid it because of the “pain.”  My guess is that one day you’ll experience real pain, and you’ll look back and wonder what you were so afraid of.  If you want it, just do it.  At least this pain goes away.

 

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The perfect gift

October 3, 2011

It’s carnival time!  I’m excited to have this post on Chronic Babe’s carnival about the perfect gift.  This is a great carnival, so please pass the word.


How do you reassure people?

October 2, 2011

Telling a stranger or an acquaintance about my health issues can be difficult, only because it is hard to make them understand.  We all know that, right?

I find it infinitely harder to talk to loved ones about it, especially when there’s something negative happening.  How do you tell your loved ones that things are bad?  The last thing I want to do is upset people.  Even when they are being the most wonderful, supportive friends and family I could ever want, I can see they’re hurting, and that is more painful than anything I deal with on a daily basis.  That’s why I don’t tell them most of what I deal with.  And that’s why I started this blog: it’s much easier to complain to anonymous readers than to upset my loved ones.  Plus, if you’re reading this then you probably have similar conditions, so you understand.  You know that as bad as things are, they’re probably not as bad as what’s in the minds of family and friends.  But how can I convince them of that?

More than anything, I want to reassure my family and friends right now that I am ok.  Yes, I need to take a few months off of work, but really, I’m ok.  I mean, sure, I’m not really ok, because if I was, I wouldn’t need the time off.  Yeah, I know that.  But aside from that, I’M OK!  REALLY!  I guess it would be more convincing if it was as true as I want it to be.

I wonder how other people handle this?  Is there any possible way to tell your loved ones that you’re worse without upsetting them?  I guess not.  I’d be upset of the situation were reversed.  But it still feels lousy.  This has been an incredibly difficult and emotional ordeal, and as I write this post, this is the first time I’ve cried.  Suddenly, I can’t stop the tears.   I can handle my own problems, but causing pain to others is unbearable.  This is the pain that no one warns you about.

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