Recoloring the winter blues

January 20, 2012

This weeks’ ChronicBabe blog carnival is all about winter wellness and fitness and surviving the winter blues.  It’s a fantastic idea, since so many of us struggle at this time of year, and even those who don’t could probably use some encouragement and ideas.  Here are a few of my own experiences….

Winter is my best season and my worst season.  It’s the easiest and it’s the hardest.  Health-wise, it’s all sorts of contradictory.

On the one hand, a lot of my symptoms are triggered by hot and humid weather, so the cold winter is a welcome relief.  Others cringe at 30 degree weather, but I actually don’t mind it (but I can do without the 5 degree weather, thanks anyway.)  On the other hand, it’s dark, and even when it’s light out the sun is lower (less direct sunlight) and my skin isn’t getting much exposure since it’s all covered up in layers of warm clothing.  So I have fewer autoimmune symptoms, but then seasonal affective disorder (SAD) comes and rears it’s ugly head.  Plus, with snow and ice, I worry a lot about falling.

This has been an unusually easy winter in Boston.  Until last week, we had almost no snow.  This has to be some kind of record.  We’ve all been walking around confused, wondering where our winter went.  In fact, until a few weeks ago, it was unseasonably warm.  We’ve had 50 degree days.  We’ve had rain.  Best of all, we’ve had clear sidewalks!  I didn’t have to worry about slipping at all, so I was able to take a bunch of long walks, which is my best and safest form of exercise these days.  The key is dressing right: warm sweater, warm pants, super warm coat, and of course hat, gloves, and scarf.  And don’t be afraid to wear long underwear if you need it.

My motto is, it doesn’t matter how I look as long as I’m warm.  I have to say that in order to be able to wear the big pink coat in public.  I have Raynaud’s, so I’m careful to keep my core warm so that my hands and feet don’t get too cold (but honestly, they do anyway unless I wear the right boots and gloves.)  If I’m dressed well like this, I can take a half hour walk, and my big problem is that partway through I’ll be sweating.  It’s all about dressing right, and staying indoors when it’s dangerously cold.

Until the sidewalks are clear I won’t be taking long walks on them if I can help it.  I’ll wear my amazing boots with the fantastic treads, which are also super warm (even my toes stay warm in the coldest weather!) and I highly recommend them, but I’m still too nervous about slipping.  If I can hit my head in my own living room, (and I’m still hurting from that one) I better be extra careful on the ice.  There are alternatives, though.  There’s walking in a mall, walking through a museum, walking on a treadmill (boring, but it gets the job done) and plenty of other indoor walking possibilities.  One winter I did exercise videos in my living room.  They’re walking programs that involve additional movements (kicks, arm swings, etc.)  But when there’s no other choice, I’ll walk outdoors in my good boots and with a lot of care.

The thing is, I’m not big on exercise.  I’m really a couch potato by nature, but I know it’s good for me.  I feel better physically.  And it helps the SAD.  Being outside during the day is huge, even on cloudy days.  Fresh air and a little sunshine go a long way.  I won’t pretend it fixes everything, but I have noticed that I’m happier and more energized on the days that I take a walk outside.  The only other things I’ve found for the SAD are a light box and reminding myself that it’s temporary.  Already the days are getting longer, and I look outside most evenings and celebrate that it’s still light out at 4:45.  Those bits of appreciation really do help.

Each season can come with it’s own problems, but there are often workarounds.  The trick is to find them.  I wish well finding yours.

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2 Comments | Expectations, Frustration, Isolation, Limitations, Symptoms, Unpredictable | Permalink
Posted by chronicrants

The fog of too many possible causes

January 18, 2012

Some possible sources of my fatigue: PCOS, side effect from meds, hypothyroid, low iron, chronic pain, connective tissue disease, some unknown cause.  Gee, that really clears it up, doesn’t it? [insert needed sarcasm emoticon here]

I’ve been depressed lately.  It’s frustrating.  I’ve been depressed before, so I know what to watch for, and it’s not extreme right now – I’m not suicidal or anything.  I’m just in a long-lasting funk.  It’s come and gone recently, especially over the last few weeks.

I’ve been worrying about my future.  What if I can’t go back to work?  How will I make ends meet?  I’ve looked at apartment listings online. I could save money by moving to the suburbs.  I could save more by moving out of state.  A 3-bedroom house in Boulder rents for less than my not-at-all-fancy 1 bedroom apartment near Boston.  But moving away from my support system, my family, my friends, my doctors, my home?  I’m just not ready for that, even though the climate here is lousy for me.

These are very legitimate concerns, especially as my back-to-work followup with my rheumatologist is approaching, even though I’m obviously not back to work yet.  I know that I’m thinking things through rationally.  I’m worried, but not over-worried.  I’m bored, but managing to mostly stay busy.  I’m frustrated, but that’s nothing new.  So why am I feeling this way?  It doesn’t make sense!

Today I felt great.  I felt uplifted as soon as I got out of bed, which was odd, since I’d woken up early from odd and scary dreams.  Still, once I got up I felt really good.  Why was today different?  I thought that if I could figure out why I felt so good today, I could replicate it.  Sounds reasonable, right?

As I thought about it while walking outside, feeling especially good, it hit me all at once, really hard.  DUH!!!  It’s sunny out today!  We’ve had a lot of gray weather, and today is sunny!  I feel like such a moron.  Ironically, because I was depressed and focused so much on a few specific areas of my life, I completely forgot to watch for my seasonal affective disorder, which seems to have been the cause of the depression.  Now let’s be honest, I’m probably experiencing some depression from everything I’ve been going through lately, but I think that is at a level that I’m comfortable with.  It’s when it started getting worse (as the days got more overcast) that I got worried.  And now I’ve finally figured out what was going on.

One of the difficult things about these illnesses is that any given symptom can have many possible causes.  It’s so hard to keep track of the possibilities, and when we lose track, it can be disorienting.  I’m grateful to have figured out where this one symptom seems to be coming from, but what about the other symptoms?  What about the other people who can’t trace theirs?  There’s so much work to be done.  I hope it happens sooner rather than later.  In the meantime, I’ll be watching the weather forecast and hoping for more sunny days soon.

Leave a Comment » | Expectations, Frustration, Isolation, Job, Limitations, Rants, Symptoms, Unpredictable | Permalink
Posted by chronicrants

Why snow is scary sh*t

January 16, 2012

…I interrupt the regularly (in theory) scheduled blog post to bring this update: it’s snowed!  Crap!

The thing with winter in Boston is, it’s predictably unpredictable.  We don’t know how much snow we’ll get or when, we don’t know how cold it will be or when, but we know that the majority of winter will involve cold and snow and ice.  That’s just how it works.  Which is why it’s been so odd this year to not get any snow, and to have little cold until this month.

Actually, there was a big storm in October that had everyone thinking it would be a tough winter, and some areas got hit hard, but others got almost nothing, and then it melted within hours.  My area was the latter.  Once I woke up to find a light dusting on parts of the sidewalk.  When I looked out the window an hour later, it was gone.  For me this has been fantastic!  Yes, we’ve had some cold days, but I just bundle up in my kick-ass coat, and all is fine.  Well, I admit to being a bit cold last night in 10 degree weather, but usually the coat is enough.

As for the snow, to be honest, if my body worked the way I’d like it to, I’d probably go skiing occasionally.  I can understand why the skiers are excited for snow.  And I do understand why snow doesn’t bother a lot of people.  Really, I only have two concerns with it.  The smaller one (since I’m not working) is that when it snows a lot (not today, thankfully) I have to find a way to dig out my car.  I can’t manage it myself, and it’s tough to find help some winters.

The bigger issue is walking.  My footing isn’t as steady as I’d like it to be, and a fall could be disastrous.  Simply spraining an ankle would be horrible – because of wrist pain, I can’t use any sort of cane or crutches; I can’t lean on anything.  And my apartment building is not wheelchair accessible.  Neither is my parents’ house.  Or most of my friends’ homes.  I love the old buildings in this area, but it means that most places aren’t accessible.  Ice is bad, but a light covering of snow, which we have now, is worse.  It can be treacherous.  For the first time this season, I’ll be pulling out the super awesome boots tomorrow.  Those things are warm and have great treads.  But I’ll still be a nervous wreck.

So the best part of this winter so far?  Being to walk without the extra fear.  I’ll miss that.  I just hope we don’t get too much more snow this winter.

[Note: This picture is from a storm in January 2005.  I’m short, but it’s still never a good sign when the snow drifts are taller than I am.]

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Survival instincts

January 11, 2012

My future is looking a bit bleak at the moment.  I’m sure a lot of that has to do with the tinted glasses I’m wearing – I’m so focused on the negatives, it’s hard to see the positives.  So what’s the answer?

I really don’t know the answer, I just know I have to keep moving forward.  That’s all I’ve got.  And for years that’s all I’ve had.  For better or for worse, I just have to keep moving forward, because there’s simply no other choice.  Just keep moving forward.

I’m reading an incredible book right now about life in North Korea.  It follows the lives of several people starting in the 1970s.  I’m up to about 1998 now and I can’t wait to see what happens next.  I know they survive only because they live to tell their stories, but as I read about the famine, about how these people beg and steal, how they eat grass and tree bark and unidentifiable food-type items, how they choose between antibiotics to save a son’s life or food for the family, it feels like a different world.  It is not as if I think there aren’t hungry people in the world, but I’ve never heard first-person accounts like this.  These people went from having three meals a day to not eating for days at a time in the course of just a year or two.  They watched their loved ones starve to death in front of them.  They describe malnourished children with distended stomachs, adults with flaking skin, and I start to cry.  And then I wonder how long I would have survived.

Forget my health problems.  Obviously that would affect things.  But aside from that, would I have made it?  Or would I have been one of the first to go?  I have a steely resolve.  I have a strong survival instinct.  I know this.  I also know that I would want to help others, that I would hesitate to steal or cheat.  But maybe in this circumstance that wouldn’t be true?  I can’t imagine it, and I would guess that no one can.  You don’t know what you’re capable of until you’re forced to find out.  Still, right now, I don’t know that I’d make it.  At the time of that famine I was a teenager, happily going to school, hanging out with friends, dating, researching colleges.  That girl might have actually done ok.  I was even more stubborn then than I am now, and somehow I think I might have been ok for the early years.  Still, I can not imagine how they survived it.

So even though I am depressed and overwhelmed by the potential problems of the near (and long-term) future, I know that I have to summon my strength.  I come from a long line of stubborn folks.  My grandparents have survived an awful lot, and much of it seems to be by shear force of will.  My mother amazes me with the obstacles she overcomes.  I have that same stubbornness in me.  It’s time to use it.  I am not facing war or famine.  Hard as my problems may be, it is really only my own inner demons that I have to fear.  So I just have to remember: keep moving forward.  There’s no other choice.  Just keep moving forward.

 

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4 Comments | Decisions, Expectations, Frustration, Limitations, Symptoms, Unpredictable | Permalink
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